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Desmond

  • 7 Years Old

  • Spina Bifida, Hydrocephalus, Club Foot, Bowel and Bladder Complications

Desmond has spina bifida, hydrocephalus and autism, but in no way do these diagnoses define him or limit his joy! His parents say is a social and caring person, always looking to greet anyone he meets in passing by shaking hands or giving a hug. Not only is he caring, but he is also fiercely independent and determined to do more things on his own; he knows what he wants! Because of this, he has always been structured in time scheduling and organization since birth. On any given day, you can find Desmond doing art, baking, cooking, out in nature, playing the piano or listening to music. He has such an imagination and loves being silly! Among his goals in life, he wants to be a veterinarian or as he calls it, a ‘pet doctor.’

“He has such an imagination and loves being silly!”

The makeover Desmond will be receiving will ensure that the space not only works for him now, but will continue to accommodate his needs for many years to come. Because of his diagnoses, he has no feeling below his knees. This requires him to use AFO braces. Getting into a bathtub or getting on hard flooring from his wheelchair is very careful work. Though he is independent and mobile with his wheelchair, they have to keep an eye on him as he can lose focus and be distracted in public settings due to his autism. Sunshine on a Ranney Day hopes to create a space for Desmond to feel safe and contained in his own bedroom, as well as a bathroom that gives space for increased independence and comfort.

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Photography by Carmen Mari

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Hudson

  • 6 Years Old

  • Gaucher Disease Type 2

Hudson is the youngest of 3 children, following his sister Olivia (8) and brother Gavin (10). He was born a happy healthy baby. Around 4 months of age, Hudson’s parents started noticing some differences in him, such as weight loss, difficulty nursing, and choking. After a few significant episodes Hudson was hospitalized around 6 months of age for further investigation. After a 16 day stay in the hospital and lots of testing Hudson was sent home with no answers and told to follow up with genetics. At the young age of 9 months old, on July 2nd, 2018, Hudson’s mom Nichole received the phone call that would forever alter the life their family had once dreamed of. Hudson was diagnosed with a rare, incurable, terminal, genetic disease, Gauchers Disease 2. They were told to put Hudson on hospice, that he would have no quality of life, never walk, talk, or live past the age of 2. Nichole’s response to them….. “but God”.

You’ve never had a hug ‘till you’ve had a Huddy hug!”

Hudson is now an amazing 5 year old who is living his BEST life! His family has and will continue to go to the ends of the earth for Hudson and his siblings. For the past 4 years they have made the drive to D.C. every 3 to 6 months for Hudson’s geneticist who is the only one in the US willing to give him a chance at life! In fact, Hudson is now being followed by geneticists all over the world as he is re-writing the books and making a way for all the children to come. 

Hudson is a very social kid, who thinks his siblings have hung the moon. He loves sports (football, basketball, and baseball), movies (Toy Story is his favorite), and has a smile that lights up his family’s world! He’s also known to give the BEST hugs. You’ve never had a hug ‘till you’ve had a Huddy hug! 

Unfortunately, Hudson is very susceptible to viruses that have kept him in the hospital ICU for more than half of his life. Because of this, they have had to keep Hudson confined within the walls of their home, limiting his exposure to the outside world. Sunshine on a Ranney Day is honored to bring light and joy into the walls that surround Hudson to help him continue living his BEST life!

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Photography by Vicki Alsup Photography

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Liam

  • 16 Years Old

  • Duchenne Muscular Dystrophy

Liam is a funny and artistic 16-year-old living with Duchenne Muscular Dystrophy. DMD is a fatal, genetic disorder marked by progressive muscle loss due to missing exons within his DNA that produces a necessary protein. He began using a wheelchair for long distances when he was eight and lost the ability to stand and walk at 12. Showering and other activities of daily living are very difficult for him now.

A typical weekend will find him and his siblings in one game room at their stations off on an epic adventure together!”

He is an epic gamer. His gaming PC allows him to interact with friends and family, near and far, within a level virtual playing field. A typical weekend will find him and his siblings in one game room at their stations off on an epic adventure together! Liam also uses creativity to explore his thoughts and feelings. He will often say “Can I have my art stuff?” so he can draw while he watches his favorite YouTubers, Ten Hundred, Jazza, and Ace of Clay. He has multiple shelves holding dozens of sketchbooks.

One of the greatest challenges caused by DMD is that his bathroom is difficult to navigate. Liam used to love taking long, hot showers to relieve the stresses of his day and the ache in his weakened muscles. When he lost the ability to stand, he lost the ability to shower comfortably. What was once a joy has become painful, both physically and emotionally. Sunshine on a Ranney Day is looking forward to creating a space that will bring back some of that relief while showering, as well as tailoring it to Liam specifically!

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Photography by Kelley Wenzel

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Kendall

  • 16 Years Old

  • Traumatic Brain Injury

Kendall’s parents are high school sweethearts and had three daughters and one son. Camryn, Kendall, Chase and Kaiden all have such beautifully unique personalities and roles within the family. The matriarch of my family is Kendall’s grandmother. She is affectionately known as Grandma to all. Although she is a feisty and fiery golden ager, she is the peacemaker of the family. Together they are Team Thomas. They are a team not because of their quantity, but because their togetherness is their happy place. They are Team Thomas, party of seven, and nothing can break them.

Kendall has a giving spirit and is loveable. She’s a hard worker and very passionate about football. She has always danced to her own beat and always thought outside of the box. Hence, the only female on the North Paulding High School freshman football team. She also played football in fifth grade. Kendall was very active. She refereed soccer, briefly played Lacrosse, loved babysitting, walked dogs, danced at church, and loved volunteering. Her favorite color is pink. Her favorite artists are Beyonce followed by Fantasia, Alicia Keys, and Chris Brown. 

“Kendall has always danced to her own beat and thought outside of the box.”

Their story and Kendall’s life suddenly changed on January 11, 2022, when the actions of one person had a piercing and life-altering effect on Team Thomas.. It was the unimaginable tragedy and near fatality of Kendall, who would later become the epitome of the power of prayer. It was that Tuesday, January 11, 2022, when Kendall was tragically struck by a vehicle at school landing on the left side of her head in front of her 11-year-old brother Chase and several others. Kendall was unconscious for almost three months. She sustained a traumatic brain injury and was fighting for her life. Due to the severity of her injuries, she has had to relearn how to do everything, from talking to walking. She has had four brain surgeries and three other procedures to accommodate her breathing and feeding. Although Kendall has made remarkable and miraculous improvements, she still has a long way to go. Nothing much has changed in regard to her infectious spirit, big personality, and love for Beyonce. Her favorite things to do now are singing and going to church.

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Photography by Catelyn Fraser

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Glenn

  • 14 Years Old

  • Cerebral Palsy, seizure disorder, oropharyngeal dysphagia, spastic quadriplegia and developmental delay

Glenn was born a twin at 38 weeks. However, his identical twin passed during the pregnancy at the 16th week. Several ultrasounds during the pregnancy showed that his head was not growing, and later it was discovered that Glenn would be born with microcephaly. In addition to the microcephaly diagnosis, he was diagnosed with cerebral palsy at birth. As an infant, Glenn had high anxiety and needed to be held. At 10 months, Glenn began having challenges swallowing food. After a swallow study was completed, he was diagnosed with failure to thrive which led to his first surgery and a g-tube placement. When Glenn was two, his mom began to often notice that his body jerked abruptly while he slept and that he startled easily at sudden noises. An EEG and a sleep study was completed and he was diagnosed with seizure disorder. Over time he has had a hip surgery and a spinal fusion surgery to correct the scoliosis diagnosis. Glenn has been very strong and resilient throughout all that he has had to endure and has come out of every surgery with a smile. 

“Glenn has been very strong and resilient throughout all that he has had to endure and has come out of every surgery with a smile.

Due to the effects of the cerebral palsy and the severe spasticity, Glenn has never used his hands, nor has he ever or walked. He continues to suffer from multiple seizures daily. He requires total care, as he is dependent on his family for all his needs. Glenn is a happy young man and is a social butterfly who is a big fan of music. He enjoys attention from anyone who will give it to him, and he loves for people to talk to him! He tries hard to talk and sing, and occasionally you can understand some of his words and phrases. He enjoys observing people and waiting for them to do or say something silly so that he can laugh. When Glenn finds something funny, he will laugh and snort to no end. He wakes up smiling every morning ready to play. He understands everything and knows what he likes and dislikes. He is not bashful at showing the world who he truly is!

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Photography by Niki Murphy

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Damon (DJ)

  • 11 Years Old

  • Spina Bifida & Hydrocephalus

“At 24 weeks gestation my life changed forever. I was told that my baby had spina bifida and that his life would be tumultuous at best. It was suggested that I terminate my pregnancy as it was predicted that his quality of life would be very low. I then sought the opinion of some amazing doctors at Children’s Healthcare of Atlanta who told me that the information I was provided would not be DJ’s story.  

DJ was born at 32 weeks and this amazing young man has not stopped making an impact in my life and the life of others. Not only did he have spina bifida, but he was also diagnosed with hydrocephalus. He struggled through some developmental delays as he did not start walking until 2 years old; BUT HE STARTED WALKING!!! A prior specialist stated he would never walk, but GOD had other plans.

“He may not run as fast or jump as high as other kids, but this kid has never stopped trying and would challenge you every chance he gets.”

He continues to be a scholar maintaining honor roll since pre-K.  He may not run as fast or jump as high as other kids, but this kid has never stopped trying and would challenge you every chance he gets. Like most kids his age he is an avid gamer with his favorite video game being Super Smash Brothers.  He is a sports fanatic who supports all of his home teams: The Falcons, The Hawks, The Braves, and Atlanta United. He is currently a member of an awesome team, The Gwinnett Heat where he plays wheelchair handball, basketball, and football.  Besides collecting all of the Nintendo Amiibo ever made, his life goals are ever evolving. I am so proud of the young man that he has become and I’m excited to see what more GOD has planned for him in the future.” – Rashida, Damon’s mom

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Photography by Niki Murphy

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Logan

  • 13 Years Old

  • Transverse Myelitis, paraplegia and autonomic dysreflexia

Logan is an active 13 year old that does not let his wheelchair or crutches cramp his style. He loves to be independent and show the world he can! Most of the time he is in his wheelchair, but uses crutches periodically to get up and down steps or to transfer. Logan acquired transverse myelitis in his spine at 5 months of age, which left him with incomplete paraplegia.

He is an athlete! He excels at everything he tries. He has been on a competition swim team, Challenger baseball (where his picture is hanging in the Little League Baseball Hall of Fame in Williamsport, PA), and currently plays on the Jr. Hawks prep basketball team with Blaze Sports. He loves his coaches and teammates and plans on hopefully getting a college scholarship in the future.

Logan is an active 13 year old that does not let his wheelchair or crutches cramp his style.”

Logan’s other interests include the guitar, books, e-sports, content creating on social media platforms and chorus in school. He also thinks he’s funny – he will tell you jokes 24/7 if you let him. Some are funny, some are dumb dad jokes, but he always thinks he’s a pro. He will tell you that when he grows up, his parent’s want him to go to college and maybe become a computer programmer or something in that field, but he wants to become a “sit down comedian.” Sunshine on a Ranney Day can’t wait to give spunky Logan an accessible dream bedroom and bathroom!

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Photography by Your Agent Catelyn

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