Tag: Dream Bedroom

Desmond

Written by Clareece Cunningham on June 27, 2024. Posted in Artisan Design Studio, Bin There Dump That Atlanta, Cambria, Construction Resources, Meet the Kids, Pulley and Associates, Randall Brothers, Real Floors Commercial.

7 Years Old
Spina Bifida, Hydrocephalus, Club Foot, Bowel and Bladder Complications

Desmond has spina bifida, hydrocephalus and autism, but in no way do these diagnoses define him or limit his joy! His parents say is a social and caring person, always looking to greet anyone he meets in passing by shaking hands or giving a hug. Not only is he caring, but he is also fiercely independent and determined to do more things on his own; he knows what he wants! Because of this, he has always been structured in time scheduling and organization since birth. On any given day, you can find Desmond doing art, baking, cooking, out in nature, playing the piano or listening to music. He has such an imagination and loves being silly! Among his goals in life, he wants to be a veterinarian or as he calls it, a ‘pet doctor.’

“He has such an imagination and loves being silly!”

The makeover Desmond will be receiving will ensure that the space not only works for him now, but will continue to accommodate his needs for many years to come. Because of his diagnoses, he has no feeling below his knees. This requires him to use AFO braces. Getting into a bathtub or getting on hard flooring from his wheelchair is very careful work. Though he is independent and mobile with his wheelchair, they have to keep an eye on him as he can lose focus and be distracted in public settings due to his autism. Sunshine on a Ranney Day hopes to create a space for Desmond to feel safe and contained in his own bedroom, as well as a bathroom that gives space for increased independence and comfort.

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Photography by Carmen Mari

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Nicolas & Maddox

Written by Clareece Cunningham on April 3, 2024. Posted in Bin There Dump That Atlanta, Meet the Kids, Seabrook Design Co.

8 Years Old
Metachromatic Leukodystrophy

Meet Nico and Maddox! In September of 2022, both boys were diagnosed with Metachromatic Leukodystrophy (MLD), a genetic disease that affects the brain and nervous system. Those with the disease progressively lose function as the substance that protects the nerve cells (Myelin) becomes damaged. The result is a loss of motor and cognitive function over time. There is no cure, and no treatment options are available at this stage of their disease.

Nico (8) is a bundle of curiosity and creativity. From the moment he said his first words, dinosaurs became his world. His playroom is a prehistoric playground adorned with dinosaur toys, including his favorite T-Rex. It’s common to find him engrossed in dinosaur books or correcting his parents on the difference between a Brachiosaurus and a Brontosaurus. Beyond his fascination with dinosaurs, Nico possesses a remarkable intellect and vivid imagination that sets him apart. His inquisitive nature has led him to develop a keen interest in puzzles. He often thrived on the mental stimulation that solving puzzles provides.

“One of the family’s favorite pastimes is following the path through their garden to look at all the vegetables and flowers planted along the way.”

Maddox (6) is a bundle of joy who can turn any moment into a celebration with his infectious laughter. His zest for life is evident in everything he does, and his laughter fills the air with happiness. He possesses an innate ability to lighten up a room, bringing smiles to the faces of those around him. His playful spirit and genuine enthusiasm for life make him a magnetic presence, drawing people in with the promise of shared laughter and joy. Music holds a special place in Maddox’s heart, and he expresses his love for life through the power of song. His repertoire includes the timeless classics “Happy Birthday” and the festive “Jingle Bells.” His unwavering enthusiasm turns any sing-along into a heartwarming performance that leaves everyone smiling.

One of the family’s favorite pastimes is following the path through their garden to look at all of the vegetables and flowers planted along the way. This is a perfect reflection of the family’s love for life and being together! Sunshine on a Ranney Day’s goal is to make them as comfortable as possible as symptoms begin to limit the boys’ abilities. We hope to help the family make the most of their time with the boys by improving the accessible areas of the home to accommodate the boys’ needs.

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Photography by Kelly Larkin

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Liam

Written by Clareece Cunningham on December 12, 2023. Posted in Bin There Dump That Atlanta, Meet the Kids, Randall Brothers, Real Floors Commercial, ServiceWise Electric, TKO Plumbing Services.

16 Years Old
Duchenne Muscular Dystrophy

Liam is a funny and artistic 16-year-old living with Duchenne Muscular Dystrophy. DMD is a fatal, genetic disorder marked by progressive muscle loss due to missing exons within his DNA that produces a necessary protein. He began using a wheelchair for long distances when he was eight and lost the ability to stand and walk at 12. Showering and other activities of daily living are very difficult for him now.

“A typical weekend will find him and his siblings in one game room at their stations off on an epic adventure together!”

He is an epic gamer. His gaming PC allows him to interact with friends and family, near and far, within a level virtual playing field. A typical weekend will find him and his siblings in one game room at their stations off on an epic adventure together! Liam also uses creativity to explore his thoughts and feelings. He will often say “Can I have my art stuff?” so he can draw while he watches his favorite YouTubers, Ten Hundred, Jazza, and Ace of Clay. He has multiple shelves holding dozens of sketchbooks.

One of the greatest challenges caused by DMD is that his bathroom is difficult to navigate. Liam used to love taking long, hot showers to relieve the stresses of his day and the ache in his weakened muscles. When he lost the ability to stand, he lost the ability to shower comfortably. What was once a joy has become painful, both physically and emotionally. Sunshine on a Ranney Day is looking forward to creating a space that will bring back some of that relief while showering, as well as tailoring it to Liam specifically!

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Photography by Kelley Wenzel

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Marie & Alondra

Written by Clareece Cunningham on December 12, 2023. Posted in Bin There Dump That Atlanta, Crosby Design Group, Meet the Kids.

17 Years Old
Diastrophic Dysplasia & Scoliosis

Marie is a determined, funny 17 yr old with a spinal cord injury. This self-proclaimed night owl loves to dance, cuddle with her orange eyed cat and plays on many wheelchair sports teams, including basketball for Blaze sports and wheelchair tennis. Marie has been active in the Atlanta disability community since the age of 2. Marie has served as a mentor to other disabled children at Georgia disability camps, volunteers at the local children’s hospital and works in a pediatrician’s office part-time. She is currently studying children’s healthcare in college. This rising high school senior excels in math, language arts and science. Marie is a fabulous athlete. She plays basketball for Blaze sports all girls/women team and wheelchair tennis.

When Marie graduates high school in late 2024, she hopes to move into a duplex her mother purchased nearby. Michele, Marie’s mom, will be renting out the other side of the duplex to Alondra and her family. This means that Marie can live independently, while also having the security of others closeby. The venture will tremendously help her gain the necessary independence that all young adults long for. Without the remodel, Marie cannot reach the next milestone in her life: learning how to live on her own with just a little help. The duplex needs improvements to make it accessible for both of the girls’ independent living, and that is where Sunshine on a Ranney Day comes in! Both sides of the duplex will receive renovations that will make it possible for both girls to grow towards independence in their daily activities.

“Marie & Alondra will be neighbors; living in the same duplex and equally working towards more independent living.”

In her current living situation, Alondra has to be carried through the home by her parents because the hallways aren’t wide enough for her wheelchair. This keeps her from being independent, but with an accessible space she can do most things on her own. For seven years, Alondra has lived in a home inaccessible to her needs. She has had many back surgeries and is in physical therapy to learn how to manage life in a power wheelchair. She plans on living with her parents for many years to come, so a home that is accessible to her will be life-changing. Alondra is applying to a technical school to be a medical assistant. Her favorite color is burgundy, and she loves lively Spanish music.

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Photography by Marcelino Aguilar

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Kendall

Written by Clareece Cunningham on December 12, 2023. Posted in Bin There Dump That Atlanta, Meet the Kids, Mohawk, Randall Brothers, ServiceWise Electric.

16 Years Old
Traumatic Brain Injury

Kendall’s parents are high school sweethearts and had three daughters and one son. Camryn, Kendall, Chase and Kaiden all have such beautifully unique personalities and roles within the family. The matriarch of my family is Kendall’s grandmother. She is affectionately known as Grandma to all. Although she is a feisty and fiery golden ager, she is the peacemaker of the family. Together they are Team Thomas. They are a team not because of their quantity, but because their togetherness is their happy place. They are Team Thomas, party of seven, and nothing can break them.

Kendall has a giving spirit and is loveable. She’s a hard worker and very passionate about football. She has always danced to her own beat and always thought outside of the box. Hence, the only female on the North Paulding High School freshman football team. She also played football in fifth grade. Kendall was very active. She refereed soccer, briefly played Lacrosse, loved babysitting, walked dogs, danced at church, and loved volunteering. Her favorite color is pink. Her favorite artists are Beyonce followed by Fantasia, Alicia Keys, and Chris Brown.

“Kendall has always danced to her own beat and thought outside of the box.”

Their story and Kendall’s life suddenly changed on January 11, 2022, when the actions of one person had a piercing and life-altering effect on Team Thomas.. It was the unimaginable tragedy and near fatality of Kendall, who would later become the epitome of the power of prayer. It was that Tuesday, January 11, 2022, when Kendall was tragically struck by a vehicle at school landing on the left side of her head in front of her 11-year-old brother Chase and several others. Kendall was unconscious for almost three months. She sustained a traumatic brain injury and was fighting for her life. Due to the severity of her injuries, she has had to relearn how to do everything, from talking to walking. She has had four brain surgeries and three other procedures to accommodate her breathing and feeding. Although Kendall has made remarkable and miraculous improvements, she still has a long way to go. Nothing much has changed in regard to her infectious spirit, big personality, and love for Beyonce. Her favorite things to do now are singing and going to church.

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Photography by Catelyn Fraser

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Glenn

Written by Clareece Cunningham on July 3, 2023. Posted in Bin There Dump That Atlanta, Meet the Kids, Randall Brothers, ServiceWise Electric.

14 Years Old
Cerebral Palsy, seizure disorder, oropharyngeal dysphagia, spastic quadriplegia and developmental delay

Glenn was born a twin at 38 weeks. However, his identical twin passed during the pregnancy at the 16th week. Several ultrasounds during the pregnancy showed that his head was not growing, and later it was discovered that Glenn would be born with microcephaly. In addition to the microcephaly diagnosis, he was diagnosed with cerebral palsy at birth. As an infant, Glenn had high anxiety and needed to be held. At 10 months, Glenn began having challenges swallowing food. After a swallow study was completed, he was diagnosed with failure to thrive which led to his first surgery and a g-tube placement. When Glenn was two, his mom began to often notice that his body jerked abruptly while he slept and that he startled easily at sudden noises. An EEG and a sleep study was completed and he was diagnosed with seizure disorder. Over time he has had a hip surgery and a spinal fusion surgery to correct the scoliosis diagnosis. Glenn has been very strong and resilient throughout all that he has had to endure and has come out of every surgery with a smile.

“Glenn has been very strong and resilient throughout all that he has had to endure and has come out of every surgery with a smile.“

Due to the effects of the cerebral palsy and the severe spasticity, Glenn has never used his hands, nor has he ever or walked. He continues to suffer from multiple seizures daily. He requires total care, as he is dependent on his family for all his needs. Glenn is a happy young man and is a social butterfly who is a big fan of music. He enjoys attention from anyone who will give it to him, and he loves for people to talk to him! He tries hard to talk and sing, and occasionally you can understand some of his words and phrases. He enjoys observing people and waiting for them to do or say something silly so that he can laugh. When Glenn finds something funny, he will laugh and snort to no end. He wakes up smiling every morning ready to play. He understands everything and knows what he likes and dislikes. He is not bashful at showing the world who he truly is!

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Photography by Niki Murphy

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Adam

Written by Clareece Cunningham on July 3, 2023. Posted in Construction Resources, Meet the Kids, Real Floors Commercial, ServiceWise Electric.

22 Years Old
Cerebral Palsy, Hydrocephalus & mild intellectual disability

Adam is a young adult who has defied the odds and turned his challenges into triumphs. Born with Hydrocephalus and cerebral palsy, Adam has never let his wheelchair-bound condition define him. Instead, he has embraced life with an unyielding spirit and an infectious zest.

“His exceptional social skills and his innate ability to uplift everyone around him make him a cherished presence.“

Bilingual and highly active, Adam’s accomplishments are as diverse as they are impressive. He is a skilled horseback rider, a tennis player, a swimmer, and even a scuba diver. His determination and discipline have also earned him a green belt in martial arts. Adam’s academic journey is equally inspiring. He attended the IDEAL program at Georgia State University, where he successfully earned his degree. Today, he continues to contribute to the university community through his work at the Center for Leadership and Disabilities.

Born a twin, Adam’s radiant personality shines as brightly as the sun he loves so much. His exceptional social skills and his innate ability to uplift everyone around him make him a cherished presence. Adam is truly a blessing to those who know him, and his loved ones eagerly anticipate his continued success and the achievement of his goals.

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Photography by Jacey Verhoef

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Damon (DJ)

Written by Clareece Cunningham on July 3, 2023. Posted in Meet the Kids, Mohawk, Randall Brothers, ServiceWise Electric, Vickers Design Group.

11 Years Old
Spina Bifida & Hydrocephalus

“At 24 weeks gestation my life changed forever. I was told that my baby had spina bifida and that his life would be tumultuous at best. It was suggested that I terminate my pregnancy as it was predicted that his quality of life would be very low. I then sought the opinion of some amazing doctors at Children’s Healthcare of Atlanta who told me that the information I was provided would not be DJ’s story.

DJ was born at 32 weeks and this amazing young man has not stopped making an impact in my life and the life of others. Not only did he have spina bifida, but he was also diagnosed with hydrocephalus. He struggled through some developmental delays as he did not start walking until 2 years old; BUT HE STARTED WALKING!!! A prior specialist stated he would never walk, but GOD had other plans.

“He may not run as fast or jump as high as other kids, but this kid has never stopped trying and would challenge you every chance he gets.”

He continues to be a scholar maintaining honor roll since pre-K. He may not run as fast or jump as high as other kids, but this kid has never stopped trying and would challenge you every chance he gets. Like most kids his age he is an avid gamer with his favorite video game being Super Smash Brothers. He is a sports fanatic who supports all of his home teams: The Falcons, The Hawks, The Braves, and Atlanta United. He is currently a member of an awesome team, The Gwinnett Heat where he plays wheelchair handball, basketball, and football. Besides collecting all of the Nintendo Amiibo ever made, his life goals are ever evolving. I am so proud of the young man that he has become and I’m excited to see what more GOD has planned for him in the future.” – Rashida, Damon’s mom

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Photography by Niki Murphy

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Marilyn

Written by Clareece Cunningham on July 3, 2023. Posted in Meet the Kids, ServiceWise Electric.

20 Years Old
Morquio syndrome

Marilyn is a smart, beautiful, and outgoing 20-year-old girl who loves BTS, shopping, boba, makeup and hanging out with friends and family!

She was born with Mucopolysaccharidosis (MPS) IV, a rare disease in which the body is missing or does not have enough of an enzyme needed to break down long chains of sugar molecules. Because of MPS she is unable to walk or grow and uses an electric wheelchair. Marilyn wears glasses and hearing aids and has had multiple surgeries to help with her health and mobility.

“This room makeover will bring her so much happiness and give her the independence of not needing help from her parents and siblings.”

In her current room situation, her wheelchair is not able to be brought into the house. She would love to have her wheelchair inside the house so that she is not limited to just being in her room. This room makeover will bring her so much happiness and give her the independence of not needing help from her parents and siblings. Sunshine on a Ranney Day is beyond thrilled to be able to offer wheelchair access into her home and a bedroom of her dreams!

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Photography by Carmen Mari

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Logan

Written by Clareece Cunningham on June 30, 2023. Posted in Cambria, Construction Resources, Meet the Kids, Mohawk, Randall Brothers, Ranney Blair Weidmann, Real Floors Commercial.

13 Years Old
Transverse Myelitis, paraplegia and autonomic dysreflexia

Logan is an active 13 year old that does not let his wheelchair or crutches cramp his style. He loves to be independent and show the world he can! Most of the time he is in his wheelchair, but uses crutches periodically to get up and down steps or to transfer. Logan acquired transverse myelitis in his spine at 5 months of age, which left him with incomplete paraplegia.

He is an athlete! He excels at everything he tries. He has been on a competition swim team, Challenger baseball (where his picture is hanging in the Little League Baseball Hall of Fame in Williamsport, PA), and currently plays on the Jr. Hawks prep basketball team with Blaze Sports. He loves his coaches and teammates and plans on hopefully getting a college scholarship in the future.

“Logan is an active 13 year old that does not let his wheelchair or crutches cramp his style.”

Logan’s other interests include the guitar, books, e-sports, content creating on social media platforms and chorus in school. He also thinks he’s funny – he will tell you jokes 24/7 if you let him. Some are funny, some are dumb dad jokes, but he always thinks he’s a pro. He will tell you that when he grows up, his parent’s want him to go to college and maybe become a computer programmer or something in that field, but he wants to become a “sit down comedian.” Sunshine on a Ranney Day can’t wait to give spunky Logan an accessible dream bedroom and bathroom!