Desmond
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7 Years Old
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Spina Bifida, Hydrocephalus, Club Foot, Bowel and Bladder Complications
Desmond has spina bifida, hydrocephalus and autism, but in no way do these diagnoses define him or limit his joy! His parents say is a social and caring person, always looking to greet anyone he meets in passing by shaking hands or giving a hug. Not only is he caring, but he is also fiercely independent and determined to do more things on his own; he knows what he wants! Because of this, he has always been structured in time scheduling and organization since birth. On any given day, you can find Desmond doing art, baking, cooking, out in nature, playing the piano or listening to music. He has such an imagination and loves being silly! Among his goals in life, he wants to be a veterinarian or as he calls it, a ‘pet doctor.’
“He has such an imagination and loves being silly!”
The makeover Desmond will be receiving will ensure that the space not only works for him now, but will continue to accommodate his needs for many years to come. Because of his diagnoses, he has no feeling below his knees. This requires him to use AFO braces. Getting into a bathtub or getting on hard flooring from his wheelchair is very careful work. Though he is independent and mobile with his wheelchair, they have to keep an eye on him as he can lose focus and be distracted in public settings due to his autism. Sunshine on a Ranney Day hopes to create a space for Desmond to feel safe and contained in his own bedroom, as well as a bathroom that gives space for increased independence and comfort.
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Photography by Carmen Mari
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