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Author: Joe Lane

Ellie

  • 5 Years Old

  • Down Syndrome, Congenital Heart Defect

Ellie is a sweet and funny five-year-old with an infectious smile. Ellie was born with Down Syndrome and a heart defect. She had her first open heart surgery at four-months-old and due to medical complications, spent almost five months in the hospital. During our time at CHOA Egleston, we stayed in the newly renovated parent sleep wing provided by Sunshine on a Ranney Day. We spent some of Ellie’s sickest nights there. The rooms were charming and cheerful and allowed us to truly rest and be ready to take care of Ellie in the mornings.

By the time she was two-and-a-half years old, Ellie endured five open-heart surgeries. She has a mechanical heart valve which has significantly improved her heart function. As she gets older, she will outgrow her valve and need additional open-heart surgeries. She has spent nearly 250 days in the hospital and is the bravest girl we know.

Ellie attends many therapies to help her achieve independence and gain strength. Even though it often takes her longer to acquire skills others take for granted, she works hard and never gives up. She is learning how to stand and walk and is getting very close to achieving these milestones.

“Even though it often takes her longer to acquire skills others take for granted, she works hard and never gives up.”

Ellie enjoys spending time with her family. She loves listening to music, especially Baby Shark, and gives the tightest, biggest hugs. Ellie’s favorite person in the world is her 8-year-old sister, Evelyn. Evelyn is Ellie’s biggest cheerleader. Evelyn loves to set up learning stations for Ellie, reads books to her, and encourages her to walk. They enjoy having sleepovers and playing together.

We are so excited for Ellie to get a home makeover therapy room! Having access to this
equipment in our home will help Ellie practice and get stronger so that she can become more independent. We believe Ellie has great potential to achieve her dreams and this is just the beginning for her. Thank you, Sunshine on a Ranney Day for making this possible.

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Photography by Marcelino Aguilar Photography

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Joseph

  • 5 Years Old

  • Spina Bifida Myelomeningocele

Joseph has always been a little Superman. Even after receiving the prenatal diagnosis of spina bifida, we couldn’t have been prepared for the challenges we were about to face. Joseph was born prematurely with a large, open hole in his spine and bravely began his life with 77 days in the NICU. He underwent ten surgeries, countless medical scans and tests, revolving doctor appointments, and multiple hospital stays, which are the routine for so many special needs children. This can be scary for a young child, but Joseph is brave beyond his years.  

Like many children with spina bifida, Joseph developed hydrocephalus, a condition that allows fluid to accumulate in the brain. This can cause brain damage from the buildup of pressure. Joseph had a shunt surgically placed in his skull as a newborn to protect his brain. The tiny tubing and valve keep the fluid that cushions the brain freely flowing. Despite the effects of hydrocephalus and an underdeveloped cerebellum, Joseph grew into a smart, funny little five-year-old boy.

For the first year and a half of his life, Joseph required 24-hour oxygen and a feeding tube for all his nutrition. By 18 months, he received his first tiny wheelchair as he is paralyzed from the waist down. He was non-verbal and used a voice-producing device until the was three and half years old. Then one day he recited the entire alphabet and hasn’t stopped talking since! Today, he only requires supplemental oxygen at night and eats by mouth on his own. He loves showing off his wheelchair “tricks,” meeting new people and learning their names. Although he has some developmental delays you will notice when you meet him, what outshines those is how earnestly he wants to be your friend. He has a strong memory for stories and loves to repeat (and repeat!)  the adventures of historical heroes he has learned about.  

“He loves showing off his wheelchair “tricks,” meeting new people, and learning their names.”

Joseph’s determination through each health challenge is growing into a resolution to be independent. His family and amazing team of therapists is doing everything they can to help him accomplish this. Unfortunately, even something as simple as a narrow doorway can thwart his efforts. That obstacle, along with a flight of stairs, means he must be carried to his bedroom. And this is just the beginning of how Joseph becomes like an infant all over again. He must be lifted to a changing station for diaper changes and all his grooming and bathing needs are fulfilled by mom and dad in a bathroom designed for those who can walk independently. 

Generous friends of the Smith family sent Joseph’s story to Sunshine on a Ranney Day and soon Joseph will have the independence and dignity he desires. The makeover of a downstairs bedroom and the transformation of a bathroom that is not accessible will provide him with the physical means to begin an independence that will stay with him his entire life. We are incredibly excited and grateful to everyone involved with this phenomenal gift.  

Just like Superman, underneath his sweet smile and friendly conversation, Joseph has strength and bravery that has kept this little guy soaring through everything life presents. Thank you to Sunshine on a Ranney Day for breaking down walls to help Joseph not just roll, but fly!

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Photography by Vicki Alsup Photography

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Reese

  • 4 Years Old

  • Acute Lymphoblastic Leukemia

I’ll never forget the pain of December 2, 2020. I was making a sales call for work and had several missed calls from my husband, Marcus. He rarely calls me repeatedly in the middle of a workday. I learned our two year old son, Reese, had a fever and small purple dots on his legs (petechia). We weren’t the kind of parents who took our kids to the doctor for every little thing, but this was different. Marcus took him to our pediatrician. They did bloodwork and found Reese’s white blood cell count was through the roof. My husband could tell by the look on the doctor’s face something was seriously wrong.

The drive from our house to Children’s Healthcare (Scottish Rite) in Atlanta for further testing, was filled with mental torture. Our minds raced, our hearts beat out of our chests, and panic sank in. We sat on a bed in a small, dimly lit room in the ER waiting to hear what was wrong with our precious boy. Marcus had stepped out to meet my mom in the parking lot since they said it could take some time. I called my dad. But just a few short minutes later, the doctor rushed in. I looked up, hoping with every ounce of my being she would say Reese was okay.

“I’m so sorry to tell you this. But we examined Reese’s blood under a microscope. And based on everything we’re seeing, your child has Leukemia.” I fell. My arms went limp, dropping my phone on the hospital bed. “No! It can’t be. Can you run more tests? Are you sure? Oh God, no!” 

“We weren’t the kind of parents who took our kids to the doctor for every little thing, but this was different.”

I sat alone feeling shattered into a million pieces, completely broken. Marcus walked in and I shared how our entire world had just been torn apart. We curled up next to Reese, holding him, caressing his cheeks, soaking the pillows with tears. I’ll never forget it. 

One year later, and our sweet boy is in remission! Praise God! He’s continuing to receive chemotherapy and takes a revolutionary medication to turn off the Philadelphia chromosome; a rare chromosome he was diagnosed with in addition to Leukemia that essentially tells his body to keep making cancer.

We thought it would be super special for Reese and his older brother, Jett, to have a playroom where they can go to take their minds off the heaviness of this season we are in. Jett has had a very hard time as he’s often felt left out and forgotten. Sometimes he even says how he wishes he had cancer too. Reese adores Jett and this would give them a special area that is all theirs.

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Photography by Niki Murphy Photography

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Brianna

  •  18 Years Old

  • Cerebral Palsy, Brain Damage, Epilepsy

Brianna “Breezy” was born on June 4, 2004.  During birth, Breezy experienced complications causing brain damage and she received a later diagnosis of cerebral palsy and epilepsy.  Breezy continues to defy odds; the doctors did not expect Breezy to live to see her first Christmas and now she is 17 years old!  Breezy has a love for music and being outdoors. She comes from a musically talented family and attends a church that has many different types of instruments.  Breezy enjoys attention and interaction with people from reading a book to simply holding hands. 

“Breezy lights up a room with her beautiful blue eyes and contagious smile.”

Breezy is nonverbal and wheelchair dependent.  Breezy has faced so many challenges throughout her 17 years of life and proves what love, prayer, and faith can do.  Breezy lights up a room with her beautiful blue eyes and contagious smile.  She continues to amaze and capture the hearts of her family, friends, church family, and community.  

Breezy is fully dependent on her family to take care of her everyday needs and an accessible bathroom and bedroom renovation will make life easier for the whole family.

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Photography by Niki Murphy Photography

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Kaitlyn

  •  12 Years Old

  • Cerebral Palsy, Epilepsy

Kaitlyn is a happy and fun-loving 10-year-old girl.  She, unfortunately, lost oxygen during her birth process and experienced seizures shortly after birth.  She had a 16 day NICU stay after birth and experiences many health and gross and fine motor challenges due to her brain injury.  She was diagnosed with Cerebral Palsy at just 8 months old and has been in weekly speech, physical and occupational therapy since just 6 months old.  She also participates in ABA therapy and intensive robotic therapy.   She is unable to use her physical voice but uses a communication device to communicate.  Kaitlyn uses a power wheelchair in the school and community settings and can walk with the support of a gait trainer in her home. 

“Kaitlyn works so hard to overcome her challenges and puts forth so much effort each and every day”

Despite this multitude of challenges, Kaitlyn lives a happy and fulfilling life.  She loves doing yoga, playing Mario Kart with an adaptive controller, and baking with her family.  She runs races with her Dad in an adaptive jogging stroller and has already completed 2 half marathons.  She loves our family beach trips to Hilton Head Island and she even does yoga on the beach!  What fun!  She is active in her church and participates in church worship and dances up a storm each week.  Kaitlyn works so hard to overcome her challenges and puts forth so much effort each and every day.  

We’re so excited for Kaitlyn to have an accessible space to give her independence and a calm place to relax after those sometimes really tough and overstimulating and overtiring days.  She is already starting to ask about makeup and becoming more interested in fashion so it will be so neat to have a space where she can learn to become more independent as she heads into her teen years soon. 

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Photography by Pear Tree Photography

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Madison

  •  12 Years Old

  • Autism, Dysarthria, Apraxia, SPD

At 24 weeks into my twin pregnancy, I was rushed to the hospital with bleeding and preterm labor. Doctors determined that Madison was showing signs of distress. The neonatologists provided me with stats on viability at 24 weeks and the medical complications that could arise should the twins come this early. Thankfully, I did not go into full labor and Madison’s heart rate returned to normal. However, I continued to experience contractions and the medical team could not determine the source of my bleeding. At the same time, Madison had been diagnosed with intrauterine growth restriction. I remained in the hospital hoping to get the twins to 33 weeks before delivering. 

When the twins were 27 weeks and five days old, and I had been in the hospital on total bedrest for 22 days, the nurses came running in to put me on oxygen. Madison’s heart rate was dropping and did not recover as quickly as they wanted. The doctors determined that for Madison to survive, we would have to deliver the twins via emergency c-section that day.  Madison weighed 1 pound 2 ounces and was only 10 1/2 inches long. She was placed on a ventilator immediately as she was not able to breath on her own. Her brother Joshua weighed 2 pounds 1 ounce, was 14 inches long, and required oxygen support as well.  While in the NICU, Madison received medication several times to close her patent ductus arteriosus (PDA), blood transfusions, and several rounds of antibiotics to fight off infections. She remained on the ventilator for five weeks and after a short course of steroids, she was able to breathe without support. After 75 days in the NICU, Madison came home. Both she and her brother were discharged on oxygen support, which continued for several months thereafter. Since their early arrival, we have seen more doctors, experts, and therapists than I can count. Madison has been diagnosed with Autism, Sensory Processing Disorder, Chronic Lung Disease, and Apraxia among other conditions.

“We often call her Goldilocks because she loves to try every bed in the house until she finds the one that is just right.”

Madison is 12-years old and attends The Link School—a private educational facility that focuses on hands-on learning. She thrives there and enjoys many typical childhood experiences such as pizza and ice cream. She is also an avid hoverboard enthusiast with a passion for Cat in the Hat and Boba Fett. She is a sweet, silly, pink-loving girl. We often call her Goldilocks because she loves to try every bed in the house until she finds the one that is just right. If you ask her what she is doing, she says, “I’m getting cozy.”

Madison survived her birth trauma because of her strength and determination. This little spitfire has defied the odds and she continues to work hard in all that she does. We are so blessed that God chose us to be Joshua and Madison’s parents. And we are grateful to Sunshine on a Raney Day for providing a Madison with a bedroom makeover.

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Photography by Birchfield Photography

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Ethan

  • 17 Years Old

  • Mecp2 Duplication Syndrome

Ethan spent the first seven years of his life without an official diagnosis other than a general diagnosis of mentally disabled.  That changed when Ethan was seven and experienced a seizure where he ultimately ended up at Children’s Healthcare of Atlanta (CHOA).  Fortunately for Ethan, the neurologist at CHOA specialized in what would eventually become Ethan’s diagnosis, Mecp2 Duplication Syndrome or M2DS.  M2DS is a rare genetic condition causing many issues such as severe intellectual disabilities, impaired motor function, spasticity, speech, gastrointestinal, and respiratory issues.

Ethan is able to enjoy life in general; he is still mobile and eats soft foods by mouth.  He has had setbacks over the years but he continuously proves how strong he is time and time again.  Ethan’s mobility has declined over the past few years due to severe seizures.  Ethan’s Sunshine makeover includes a wheelchair-accessible bathroom and wheelchair ramp going into his house to make daily life a little easier for everyone.

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Photography by Marcelino Aguilar Photography

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Reid

  • 7 Years Old

  • Recessive Dystrophic Epidermolysis Bullosa

Reid is a somewhat shy seven-year-old boy who was born with Recessive Dystrophic Epidermolysis Bullosa; an extremely painful and debilitating genetic skin disease. At birth, Reid was missing large pieces of skin on his back, legs, hands and arms. Kids born with RDEB lack a critical protein that binds our layers of skin together like velcro. Without this protein, Collagen VII, Reid’s skin blisters and tears all over his body, mouth, esophagus, and eyes. What he and others with this severe form of the disease go through is beyond anyone’s comprehension. Reid endures extremely painful daily bandage changes. The severe wounds all over his body must be carefully cleaned and his mother must puncture any blisters to prevent them from spreading. Without the Collagen VII protein, blisters develop from the slightest friction (clothes seams, car seats, daily life) and can get larger because the velcro is not there to stop the spreading. 

“We are so pleased that Sunshine on a Ranney Day has offered to transform our bonus room into a dream bedroom for Reid.”

Despite living with this debilitating condition, Reid enjoys building with Lincoln Logs and riding his plasma bike. He also enjoys the company of his two older siblings, Avery and Barret. Although Reid has a feeding tube, he loves food! Even though eating can be painful, he enjoys small bites of cheese pizza and hotdogs when he doesn’t have any blisters in his mouth or throat. He is homeschooled and loves listening to Christian Hip Hop or watching The Spy Ninjas on YouTube.

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Photography by Pear Tree Photography

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The Cottage School

Founded in 1985

TCS is a school that provides an educational environment for students in grades 4-12 with a wide variety of special needs. In addition to struggling academically, socially, and emotionally many of our students come to us broken in spirit. Our program works on building our students’ self-confidence, self-determination and helping each one of them find their voices. The Cottage School prepares individuals for fulfillment of their true and tremendous potential as confident, productive, and independent adults. The number of families that have shared with us how this program has literally saved their child’s life is innumerable. It is not just a school; it is a community; it is a soft-landing spot and launching pad for our student’s futures; it is a family. As one of our middle school students recently stated…”It is our differences that make us a community…but our similarities that make us a family.”

Cottage School (TCS) is delighted to be partnering with Sunshine on a Ranney Day for the upcoming makeover of our main office lobby area. Two Atlanta area non-profits working together to help support children with special needs…we couldn’t think of a better match! We are especially excited that this new relationship is one that we anticipate will go well beyond this project. Helping those in need in our community for years to come as we refer families respectively between our programs for their specific needs makes this an exceptional collaboration.

“It is our differences that make us a community…but our similarities that make us a family.”

This project is so much more than a “face-lift” for us. The design area is the first stop for our prospective students with their families as they search for that soft-landing spot after struggling in prior environments.This initial meeting can be rather emotional as background information and struggles are discussed. We have dreamt of meeting with these families in a warm, comfortable setting where they immediately feel at home. The work that Sunshine on a Ranney Day is providing us with that and so much more.

In addition to prospective families, all visitors (including community partners, donors, prospective sponsors, fellow educators, begin their visit to The Cottage School in the main lobby area. It is the focal point for our entire campus that also sees an average of 150 students and 40 staff members a day traveling through this space. 

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Anthony Jr. & Lyric

  • 14 & 6 Years Old

  • Quad Cerebal Palsy, Epilepsy, Autism

Anthony Jr. was born on December 15, 2005. He has cerebral palsy and epilepsy caused by brain-damaged experienced during a complicated and difficult birth.  Anthony is non-verbal and wheelchair-dependent.  He is a vibrant child and loves his family.  Anthony enjoys music which is no surprise since he comes from a musical family.  

Despite all of Anthony Jr.’s challenges he can communicate and enjoys a good laugh.  He shows a love for life and what it means to fully live in the moment.  Anthony Jr.’s love for life also keeps his entire family going. 

“He is always the energy in the room that encourages others to be ok in moments of darkness.”

Lyric, younger brother to Anthony Jr., was born on December 11, 2015. Lyric was diagnosed with autism in 2017.  He is an extremely intelligent little boy and continues to amaze everyone with what he knows.  He enjoys music just like his older brother, Anthony Jr.  Lyric also enjoys being outdoors and interacting with people.  

Lyric faces challenges every day and he works really hard to do his best. He is always the energy in the room that encourages others to be ok in moments of darkness. He is such a loving little boy just like Anthony Jr.  Lyric tries his hardest to help his big brother.  He watches others take care of Anthony Jr. and attempts to mimic their actions. 

Lyric is truly what helps Anthony Jr. continue to smile! Lyric and Anthony Jr. represent brotherly love like no others!

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Photography by Vicki Alsup Photography

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