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Tag: 2022

Kaitlyn

Written by Joe Lane on . Posted in Meet the Kids, Vickers Design Group.

  •  12 Years Old

  • Cerebral Palsy, Epilepsy

Kaitlyn is a happy and fun-loving 10-year-old girl.  She, unfortunately, lost oxygen during her birth process and experienced seizures shortly after birth.  She had a 16 day NICU stay after birth and experiences many health and gross and fine motor challenges due to her brain injury.  She was diagnosed with Cerebral Palsy at just 8 months old and has been in weekly speech, physical and occupational therapy since just 6 months old.  She also participates in ABA therapy and intensive robotic therapy.   She is unable to use her physical voice but uses a communication device to communicate.  Kaitlyn uses a power wheelchair in the school and community settings and can walk with the support of a gait trainer in her home. 

“Kaitlyn works so hard to overcome her challenges and puts forth so much effort each and every day”

Despite this multitude of challenges, Kaitlyn lives a happy and fulfilling life.  She loves doing yoga, playing Mario Kart with an adaptive controller, and baking with her family.  She runs races with her Dad in an adaptive jogging stroller and has already completed 2 half marathons.  She loves our family beach trips to Hilton Head Island and she even does yoga on the beach!  What fun!  She is active in her church and participates in church worship and dances up a storm each week.  Kaitlyn works so hard to overcome her challenges and puts forth so much effort each and every day.  

We’re so excited for Kaitlyn to have an accessible space to give her independence and a calm place to relax after those sometimes really tough and overstimulating and overtiring days.  She is already starting to ask about makeup and becoming more interested in fashion so it will be so neat to have a space where she can learn to become more independent as she heads into her teen years soon. 

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Photography by Pear Tree Photography

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Madison

Written by Joe Lane on . Posted in Meet the Kids, Seabrook Design Co.

  •  12 Years Old

  • Autism, Dysarthria, Apraxia, SPD

At 24 weeks into my twin pregnancy, I was rushed to the hospital with bleeding and preterm labor. Doctors determined that Madison was showing signs of distress. The neonatologists provided me with stats on viability at 24 weeks and the medical complications that could arise should the twins come this early. Thankfully, I did not go into full labor and Madison’s heart rate returned to normal. However, I continued to experience contractions and the medical team could not determine the source of my bleeding. At the same time, Madison had been diagnosed with intrauterine growth restriction. I remained in the hospital hoping to get the twins to 33 weeks before delivering. 

When the twins were 27 weeks and five days old, and I had been in the hospital on total bedrest for 22 days, the nurses came running in to put me on oxygen. Madison’s heart rate was dropping and did not recover as quickly as they wanted. The doctors determined that for Madison to survive, we would have to deliver the twins via emergency c-section that day.  Madison weighed 1 pound 2 ounces and was only 10 1/2 inches long. She was placed on a ventilator immediately as she was not able to breath on her own. Her brother Joshua weighed 2 pounds 1 ounce, was 14 inches long, and required oxygen support as well.  While in the NICU, Madison received medication several times to close her patent ductus arteriosus (PDA), blood transfusions, and several rounds of antibiotics to fight off infections. She remained on the ventilator for five weeks and after a short course of steroids, she was able to breathe without support. After 75 days in the NICU, Madison came home. Both she and her brother were discharged on oxygen support, which continued for several months thereafter. Since their early arrival, we have seen more doctors, experts, and therapists than I can count. Madison has been diagnosed with Autism, Sensory Processing Disorder, Chronic Lung Disease, and Apraxia among other conditions.

“We often call her Goldilocks because she loves to try every bed in the house until she finds the one that is just right.”

Madison is 12-years old and attends The Link School—a private educational facility that focuses on hands-on learning. She thrives there and enjoys many typical childhood experiences such as pizza and ice cream. She is also an avid hoverboard enthusiast with a passion for Cat in the Hat and Boba Fett. She is a sweet, silly, pink-loving girl. We often call her Goldilocks because she loves to try every bed in the house until she finds the one that is just right. If you ask her what she is doing, she says, “I’m getting cozy.”

Madison survived her birth trauma because of her strength and determination. This little spitfire has defied the odds and she continues to work hard in all that she does. We are so blessed that God chose us to be Joshua and Madison’s parents. And we are grateful to Sunshine on a Raney Day for providing a Madison with a bedroom makeover.

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Photography by Birchfield Photography

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Ethan

Written by Joe Lane on . Posted in Meet the Kids.

  • 17 Years Old

  • Mecp2 Duplication Syndrome

Ethan spent the first seven years of his life without an official diagnosis other than a general diagnosis of mentally disabled.  That changed when Ethan was seven and experienced a seizure where he ultimately ended up at Children’s Healthcare of Atlanta (CHOA).  Fortunately for Ethan, the neurologist at CHOA specialized in what would eventually become Ethan’s diagnosis, Mecp2 Duplication Syndrome or M2DS.  M2DS is a rare genetic condition causing many issues such as severe intellectual disabilities, impaired motor function, spasticity, speech, gastrointestinal, and respiratory issues.

Ethan is able to enjoy life in general; he is still mobile and eats soft foods by mouth.  He has had setbacks over the years but he continuously proves how strong he is time and time again.  Ethan’s mobility has declined over the past few years due to severe seizures.  Ethan’s Sunshine makeover includes a wheelchair-accessible bathroom and wheelchair ramp going into his house to make daily life a little easier for everyone.

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Photography by Marcelino Aguilar Photography

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Reid

Written by Joe Lane on . Posted in Meet the Kids, The Wall Nut.

  • 7 Years Old

  • Recessive Dystrophic Epidermolysis Bullosa

Reid is a somewhat shy seven-year-old boy who was born with Recessive Dystrophic Epidermolysis Bullosa; an extremely painful and debilitating genetic skin disease. At birth, Reid was missing large pieces of skin on his back, legs, hands and arms. Kids born with RDEB lack a critical protein that binds our layers of skin together like velcro. Without this protein, Collagen VII, Reid’s skin blisters and tears all over his body, mouth, esophagus, and eyes. What he and others with this severe form of the disease go through is beyond anyone’s comprehension. Reid endures extremely painful daily bandage changes. The severe wounds all over his body must be carefully cleaned and his mother must puncture any blisters to prevent them from spreading. Without the Collagen VII protein, blisters develop from the slightest friction (clothes seams, car seats, daily life) and can get larger because the velcro is not there to stop the spreading. 

“We are so pleased that Sunshine on a Ranney Day has offered to transform our bonus room into a dream bedroom for Reid.”

Despite living with this debilitating condition, Reid enjoys building with Lincoln Logs and riding his plasma bike. He also enjoys the company of his two older siblings, Avery and Barret. Although Reid has a feeding tube, he loves food! Even though eating can be painful, he enjoys small bites of cheese pizza and hotdogs when he doesn’t have any blisters in his mouth or throat. He is homeschooled and loves listening to Christian Hip Hop or watching The Spy Ninjas on YouTube.

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Photography by Pear Tree Photography

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The Cottage School

Written by Joe Lane on . Posted in Community Projects, Crosby Design Group.

Founded in 1985

TCS is a school that provides an educational environment for students in grades 4-12 with a wide variety of special needs. In addition to struggling academically, socially, and emotionally many of our students come to us broken in spirit. Our program works on building our students’ self-confidence, self-determination and helping each one of them find their voices. The Cottage School prepares individuals for fulfillment of their true and tremendous potential as confident, productive, and independent adults. The number of families that have shared with us how this program has literally saved their child’s life is innumerable. It is not just a school; it is a community; it is a soft-landing spot and launching pad for our student’s futures; it is a family. As one of our middle school students recently stated…”It is our differences that make us a community…but our similarities that make us a family.”

Cottage School (TCS) is delighted to be partnering with Sunshine on a Ranney Day for the upcoming makeover of our main office lobby area. Two Atlanta area non-profits working together to help support children with special needs…we couldn’t think of a better match! We are especially excited that this new relationship is one that we anticipate will go well beyond this project. Helping those in need in our community for years to come as we refer families respectively between our programs for their specific needs makes this an exceptional collaboration.

“It is our differences that make us a community…but our similarities that make us a family.”

This project is so much more than a “face-lift” for us. The design area is the first stop for our prospective students with their families as they search for that soft-landing spot after struggling in prior environments.This initial meeting can be rather emotional as background information and struggles are discussed. We have dreamt of meeting with these families in a warm, comfortable setting where they immediately feel at home. The work that Sunshine on a Ranney Day is providing us with that and so much more.

In addition to prospective families, all visitors (including community partners, donors, prospective sponsors, fellow educators, begin their visit to The Cottage School in the main lobby area. It is the focal point for our entire campus that also sees an average of 150 students and 40 staff members a day traveling through this space. 

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Cyrus

Written by Joe Lane on . Posted in Meet the Kids.

  • 15 Years Old

  • Autism

Cyrus was born 15 weeks early and weighed 1 pound 10 ounces.  He spent his first year at Scottish Rite in the NICU with respiratory and gastrointestinal issues, retinopathy of prematurity, and a number of other complications and surgeries.  For the first eight months of Cyrus’ life, he was classified as failure to thrive but Cyrus had other plans.  When Cyrus was released from the hospital he came home with a trach and was on a ventilator 24/7, feeding tube, and diagnosed with cerebral palsy and severe developmental delay.

Cyrus has grown and thrived throughout his almost 7 years of life.  Cyrus is considered medically fragile, legally blind, and continues to battle retinopathy of prematurity.  He can walk independently using adaptive equipment.  He has completed kindergarten and works so hard undergoing multiple therapies; physical, occupational, vision, and speech. 

Cyrus does not place limitations on himself.  Cyrus was not supposed to live but he continues to defy expectations.  Cyrus is non-verbal but that does not stop him from expressing himself.  He is active and strong and is an expert countertop and furniture climber. 

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Photography by Pear Tree Photography

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Aidan & Brendan

Written by Babby Norsworthy on . Posted in Meet the Kids.

  • 15 Years Old

  • Autism

Moms of boys remember the time when their little boy’s height surpassed their own. They mark a wall, the boy talks smack to mom, and they laugh as if it’s a right of passage. It is no different for 15-year-old twins Aidan and Brendan. At 6 feet and nearly 6 feet, they present the picture of grown men next to petite 5’3″ mom. Born at 28 weeks, the twins have differing degrees of Autism. Aidan is more moderate; with his developmental delays, he functions at an eight-year-old level. Brendan is non-verbal, and communication is challenging as he struggles to learn signs. Developmentally, he is in the 3 to 4-year-old range, and also has epilepsy.

“Born at 28 weeks, the twins have differing degrees of Autism.”

In addition to school and therapy, the boys enjoy traditional favorite past times. Aidan loves Pokemon, Toystory, and Minecraft. He loves learning about the weather; but, he finds great comfort in his favorite weighted blanket when thunderstorms roll around. Like so many teen boys, Brendan is a UGA fan, “Go Dawgs!” and loves to play golf. You can also find him enjoying the perennial favorites, Wheel of Fortune and Jeopardy, on evening TV. Both boys share in the excitement of Christmas as we all know Santa knows no age.

A dream bedroom makeover will maximize the space and make it comfortable for young men — Sunshine On A Ranney Day’s specialty.

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