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Celia

Written by Joe Lane on . Posted in Meet the Kids, Ranney Blair Weidmann.

  • 13 Years Old

  • Leigh’s Disease

Celia and her twin sister were adopted from China at the age of 26 months. Celia and her twin are currently thirteen years old and the youngest of six kids.  During adoption, it was thought that Celia had cerebral palsy (CP) but after extensive testing, Celia likely has a mitochondrial disorder, which is neuro-degenerative, called Leigh’s disease or a Leigh-like syndrome. 

“She even has a superpower; Celia can use her toes to type and play games on her iPad!”

Celia cannot walk unassisted, use her hands purposefully, or eat by mouth.  Celia has endured many surgeries and hospitalizations and unfortunately had a setback in 2020 during a procedure that was supposed to help improve her dystonia (painful involuntary muscle contractures).  Celia lost the ability to speak, process information, sleep, and most devastatingly her sweet spunky personality.  In 2021 the procedure was reversed and hopefully with the love and support of Celia’s family, their faith in God, and extensive therapies she can regain what was lost.

Celia’s family wishes everyone had a Celia in their lives.  She’s joyful, happy, has an amazing smile, and loves her family.  She even has a superpower; Celia can use her toes to type and play games on her iPad!  Celia has good days and bad days, she struggles with strength, stamina, communication, and mental cognition but through it all, she is the brightest of lights and a gift to all that know her.  Celia truly is God’s precious blessing!

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Photography by Nicole W Photography

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Brylee

Written by Joe Lane on . Posted in Meet the Kids.

  • 9 Years Old

  • Nemaline Rod Myopathy

Brylee was born with a rare disease, Nemaline Rod Myopathy.  She spent time in the NICU at Children’s Healthcare of Atlanta.  Brylee had a tracheotomy procedure in order to keep her alive.  It was also explained to Brylee’s family that kids with severe Nemaline, like Brylee, typically live 18 months and can only use their eyelids since the disease affects the muscles.  Brylee has defied the odds, she can move her arms with help, kick her legs, and talks nonstop.

“Brylee loves animals and wants to be a veterinarian when she grows up.”

Brylee is now 10 years old and has had multiple surgeries and visits to the hospital. Brylee is a fighter!  Brylee can drive her wheelchair around the house.  She loves playing with her cousins and friends along with trips to the playground.  Brylee loves animals and wants to be a veterinarian when she grows up.  Brylee and her family are so excited about her accessible bathroom!

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Photography by Kristi Weaver Photography

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Braxton

Written by Joe Lane on . Posted in Means & Carney Interiors, Meet the Kids.

  • 12 Years Old

  • Spina Bifida Lipomyelomeningocele

Braxton is 13 years old and the oldest of 3, he’s a big brother to Wyatt and Landry.  On most days, you can find him playing basketball in the driveway, gaming on the Xbox, or begging his mom to take him to the Lego store.  Braxton was born with Spina Bifida/Lipomyelomeningocele and has endured over 14 surgeries to date at Children’s Healthcare of Atlanta.  Braxton attends Veritas Classical Schools which is a home school hybrid.  This allows Braxton’s schedule to be more flexible when medical appointments, therapies, and surgeries arise.  Although ambulatory, Braxton’s mobility has lessened over the years and he’s relying more on his wheelchair and other assistive devices to accomplish daily activities. 

“He is very creative and has an 8-foot table housing a giant city that he has designed and continuously recreates all himself.”

Braxton sometimes struggles physically since he is unable to run and walk like most kids his age but that has not slowed him down!  Braxton is the athlete of his family, playing both wheelchair basketball and competing in adaptive track and field for BlazeSports.  He would actually like to participate in ALL adaptive sports, but he would need his own chauffer.  On the basketball court, #5 plays with his whole heart and fierce determination!  Braxton recently made the Prep All-Tournament Team at the NWBA Nationals in 2022.  He hopes to play wheelchair basketball at the collegiate level as well as dreams to make Team USA one day.   On the track, he is a lover of field events and broke the national record for shotput in 2019.  Braxton is also an avid member of Scouts in Troop 1459 and is on track to earn his Eagle Scout Ranking in the future. He recently went on a 4-day adventure to Cumberland Island where he was able to hike over 20 miles with his troop in his Grit Freedom Chair.   Braxton is also a LEGO MANIAC and has thousands and thousands in his room!  He is very creative and has an 8-foot table housing a giant city that he has designed and continuously recreates all himself. He is an amazing artist as well and loves to veg out and play video games with his brother and friends. Braxton is active in his church youth group at North Point Community Church and is surrounded by amazing leaders and friends.  

Braxton’s family calls him Braxton the Brave as he inspires his family everyday through the path that God has laid out before him.  Braxton and his family are so excited about his bedroom and bathroom accessible makeover.  Gaining that extra independence will be a game changer as well as make each day brighter!

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Photography by Niki Murphy Photography

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Ellie

Written by Joe Lane on . Posted in Meet the Kids.

  • 5 Years Old

  • Down Syndrome, Congenital Heart Defect

Ellie is a sweet and funny five-year-old with an infectious smile. Ellie was born with Down Syndrome and a heart defect. She had her first open heart surgery at four-months-old and due to medical complications, spent almost five months in the hospital. During our time at CHOA Egleston, we stayed in the newly renovated parent sleep wing provided by Sunshine on a Ranney Day. We spent some of Ellie’s sickest nights there. The rooms were charming and cheerful and allowed us to truly rest and be ready to take care of Ellie in the mornings.

By the time she was two-and-a-half years old, Ellie endured five open-heart surgeries. She has a mechanical heart valve which has significantly improved her heart function. As she gets older, she will outgrow her valve and need additional open-heart surgeries. She has spent nearly 250 days in the hospital and is the bravest girl we know.

Ellie attends many therapies to help her achieve independence and gain strength. Even though it often takes her longer to acquire skills others take for granted, she works hard and never gives up. She is learning how to stand and walk and is getting very close to achieving these milestones.

“Even though it often takes her longer to acquire skills others take for granted, she works hard and never gives up.”

Ellie enjoys spending time with her family. She loves listening to music, especially Baby Shark, and gives the tightest, biggest hugs. Ellie’s favorite person in the world is her 8-year-old sister, Evelyn. Evelyn is Ellie’s biggest cheerleader. Evelyn loves to set up learning stations for Ellie, reads books to her, and encourages her to walk. They enjoy having sleepovers and playing together.

We are so excited for Ellie to get a home makeover therapy room! Having access to this
equipment in our home will help Ellie practice and get stronger so that she can become more independent. We believe Ellie has great potential to achieve her dreams and this is just the beginning for her. Thank you, Sunshine on a Ranney Day for making this possible.

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Photography by Marcelino Aguilar Photography

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Joseph

Written by Joe Lane on . Posted in Crosby Design Group, Meet the Kids.

  • 5 Years Old

  • Spina Bifida Myelomeningocele

Joseph has always been a little Superman. Even after receiving the prenatal diagnosis of spina bifida, we couldn’t have been prepared for the challenges we were about to face. Joseph was born prematurely with a large, open hole in his spine and bravely began his life with 77 days in the NICU. He underwent ten surgeries, countless medical scans and tests, revolving doctor appointments, and multiple hospital stays, which are the routine for so many special needs children. This can be scary for a young child, but Joseph is brave beyond his years.  

Like many children with spina bifida, Joseph developed hydrocephalus, a condition that allows fluid to accumulate in the brain. This can cause brain damage from the buildup of pressure. Joseph had a shunt surgically placed in his skull as a newborn to protect his brain. The tiny tubing and valve keep the fluid that cushions the brain freely flowing. Despite the effects of hydrocephalus and an underdeveloped cerebellum, Joseph grew into a smart, funny little five-year-old boy.

For the first year and a half of his life, Joseph required 24-hour oxygen and a feeding tube for all his nutrition. By 18 months, he received his first tiny wheelchair as he is paralyzed from the waist down. He was non-verbal and used a voice-producing device until the was three and half years old. Then one day he recited the entire alphabet and hasn’t stopped talking since! Today, he only requires supplemental oxygen at night and eats by mouth on his own. He loves showing off his wheelchair “tricks,” meeting new people and learning their names. Although he has some developmental delays you will notice when you meet him, what outshines those is how earnestly he wants to be your friend. He has a strong memory for stories and loves to repeat (and repeat!)  the adventures of historical heroes he has learned about.  

“He loves showing off his wheelchair “tricks,” meeting new people, and learning their names.”

Joseph’s determination through each health challenge is growing into a resolution to be independent. His family and amazing team of therapists is doing everything they can to help him accomplish this. Unfortunately, even something as simple as a narrow doorway can thwart his efforts. That obstacle, along with a flight of stairs, means he must be carried to his bedroom. And this is just the beginning of how Joseph becomes like an infant all over again. He must be lifted to a changing station for diaper changes and all his grooming and bathing needs are fulfilled by mom and dad in a bathroom designed for those who can walk independently. 

Generous friends of the Smith family sent Joseph’s story to Sunshine on a Ranney Day and soon Joseph will have the independence and dignity he desires. The makeover of a downstairs bedroom and the transformation of a bathroom that is not accessible will provide him with the physical means to begin an independence that will stay with him his entire life. We are incredibly excited and grateful to everyone involved with this phenomenal gift.  

Just like Superman, underneath his sweet smile and friendly conversation, Joseph has strength and bravery that has kept this little guy soaring through everything life presents. Thank you to Sunshine on a Ranney Day for breaking down walls to help Joseph not just roll, but fly!

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Photography by Vicki Alsup Photography

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Reese

Written by Joe Lane on . Posted in Meet the Kids.

  • 4 Years Old

  • Acute Lymphoblastic Leukemia

I’ll never forget the pain of December 2, 2020. I was making a sales call for work and had several missed calls from my husband, Marcus. He rarely calls me repeatedly in the middle of a workday. I learned our two year old son, Reese, had a fever and small purple dots on his legs (petechia). We weren’t the kind of parents who took our kids to the doctor for every little thing, but this was different. Marcus took him to our pediatrician. They did bloodwork and found Reese’s white blood cell count was through the roof. My husband could tell by the look on the doctor’s face something was seriously wrong.

The drive from our house to Children’s Healthcare (Scottish Rite) in Atlanta for further testing, was filled with mental torture. Our minds raced, our hearts beat out of our chests, and panic sank in. We sat on a bed in a small, dimly lit room in the ER waiting to hear what was wrong with our precious boy. Marcus had stepped out to meet my mom in the parking lot since they said it could take some time. I called my dad. But just a few short minutes later, the doctor rushed in. I looked up, hoping with every ounce of my being she would say Reese was okay.

“I’m so sorry to tell you this. But we examined Reese’s blood under a microscope. And based on everything we’re seeing, your child has Leukemia.” I fell. My arms went limp, dropping my phone on the hospital bed. “No! It can’t be. Can you run more tests? Are you sure? Oh God, no!” 

“We weren’t the kind of parents who took our kids to the doctor for every little thing, but this was different.”

I sat alone feeling shattered into a million pieces, completely broken. Marcus walked in and I shared how our entire world had just been torn apart. We curled up next to Reese, holding him, caressing his cheeks, soaking the pillows with tears. I’ll never forget it. 

One year later, and our sweet boy is in remission! Praise God! He’s continuing to receive chemotherapy and takes a revolutionary medication to turn off the Philadelphia chromosome; a rare chromosome he was diagnosed with in addition to Leukemia that essentially tells his body to keep making cancer.

We thought it would be super special for Reese and his older brother, Jett, to have a playroom where they can go to take their minds off the heaviness of this season we are in. Jett has had a very hard time as he’s often felt left out and forgotten. Sometimes he even says how he wishes he had cancer too. Reese adores Jett and this would give them a special area that is all theirs.

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Photography by Niki Murphy Photography

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Brianna

Written by Joe Lane on . Posted in Artisan Design Studio, Meet the Kids.

  •  18 Years Old

  • Cerebral Palsy, Brain Damage, Epilepsy

Brianna “Breezy” was born on June 4, 2004.  During birth, Breezy experienced complications causing brain damage and she received a later diagnosis of cerebral palsy and epilepsy.  Breezy continues to defy odds; the doctors did not expect Breezy to live to see her first Christmas and now she is 17 years old!  Breezy has a love for music and being outdoors. She comes from a musically talented family and attends a church that has many different types of instruments.  Breezy enjoys attention and interaction with people from reading a book to simply holding hands. 

“Breezy lights up a room with her beautiful blue eyes and contagious smile.”

Breezy is nonverbal and wheelchair dependent.  Breezy has faced so many challenges throughout her 17 years of life and proves what love, prayer, and faith can do.  Breezy lights up a room with her beautiful blue eyes and contagious smile.  She continues to amaze and capture the hearts of her family, friends, church family, and community.  

Breezy is fully dependent on her family to take care of her everyday needs and an accessible bathroom and bedroom renovation will make life easier for the whole family.

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Photography by Niki Murphy Photography

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Kaitlyn

Written by Joe Lane on . Posted in Meet the Kids, Vickers Design Group.

  •  12 Years Old

  • Cerebral Palsy, Epilepsy

Kaitlyn is a happy and fun-loving 10-year-old girl.  She, unfortunately, lost oxygen during her birth process and experienced seizures shortly after birth.  She had a 16 day NICU stay after birth and experiences many health and gross and fine motor challenges due to her brain injury.  She was diagnosed with Cerebral Palsy at just 8 months old and has been in weekly speech, physical and occupational therapy since just 6 months old.  She also participates in ABA therapy and intensive robotic therapy.   She is unable to use her physical voice but uses a communication device to communicate.  Kaitlyn uses a power wheelchair in the school and community settings and can walk with the support of a gait trainer in her home. 

“Kaitlyn works so hard to overcome her challenges and puts forth so much effort each and every day”

Despite this multitude of challenges, Kaitlyn lives a happy and fulfilling life.  She loves doing yoga, playing Mario Kart with an adaptive controller, and baking with her family.  She runs races with her Dad in an adaptive jogging stroller and has already completed 2 half marathons.  She loves our family beach trips to Hilton Head Island and she even does yoga on the beach!  What fun!  She is active in her church and participates in church worship and dances up a storm each week.  Kaitlyn works so hard to overcome her challenges and puts forth so much effort each and every day.  

We’re so excited for Kaitlyn to have an accessible space to give her independence and a calm place to relax after those sometimes really tough and overstimulating and overtiring days.  She is already starting to ask about makeup and becoming more interested in fashion so it will be so neat to have a space where she can learn to become more independent as she heads into her teen years soon. 

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Photography by Pear Tree Photography

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Madison

Written by Joe Lane on . Posted in Meet the Kids, Seabrook Design Co.

  •  12 Years Old

  • Autism, Dysarthria, Apraxia, SPD

At 24 weeks into my twin pregnancy, I was rushed to the hospital with bleeding and preterm labor. Doctors determined that Madison was showing signs of distress. The neonatologists provided me with stats on viability at 24 weeks and the medical complications that could arise should the twins come this early. Thankfully, I did not go into full labor and Madison’s heart rate returned to normal. However, I continued to experience contractions and the medical team could not determine the source of my bleeding. At the same time, Madison had been diagnosed with intrauterine growth restriction. I remained in the hospital hoping to get the twins to 33 weeks before delivering. 

When the twins were 27 weeks and five days old, and I had been in the hospital on total bedrest for 22 days, the nurses came running in to put me on oxygen. Madison’s heart rate was dropping and did not recover as quickly as they wanted. The doctors determined that for Madison to survive, we would have to deliver the twins via emergency c-section that day.  Madison weighed 1 pound 2 ounces and was only 10 1/2 inches long. She was placed on a ventilator immediately as she was not able to breath on her own. Her brother Joshua weighed 2 pounds 1 ounce, was 14 inches long, and required oxygen support as well.  While in the NICU, Madison received medication several times to close her patent ductus arteriosus (PDA), blood transfusions, and several rounds of antibiotics to fight off infections. She remained on the ventilator for five weeks and after a short course of steroids, she was able to breathe without support. After 75 days in the NICU, Madison came home. Both she and her brother were discharged on oxygen support, which continued for several months thereafter. Since their early arrival, we have seen more doctors, experts, and therapists than I can count. Madison has been diagnosed with Autism, Sensory Processing Disorder, Chronic Lung Disease, and Apraxia among other conditions.

“We often call her Goldilocks because she loves to try every bed in the house until she finds the one that is just right.”

Madison is 12-years old and attends The Link School—a private educational facility that focuses on hands-on learning. She thrives there and enjoys many typical childhood experiences such as pizza and ice cream. She is also an avid hoverboard enthusiast with a passion for Cat in the Hat and Boba Fett. She is a sweet, silly, pink-loving girl. We often call her Goldilocks because she loves to try every bed in the house until she finds the one that is just right. If you ask her what she is doing, she says, “I’m getting cozy.”

Madison survived her birth trauma because of her strength and determination. This little spitfire has defied the odds and she continues to work hard in all that she does. We are so blessed that God chose us to be Joshua and Madison’s parents. And we are grateful to Sunshine on a Raney Day for providing a Madison with a bedroom makeover.

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Photography by Birchfield Photography

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Ethan

Written by Joe Lane on . Posted in Meet the Kids.

  • 17 Years Old

  • Mecp2 Duplication Syndrome

Ethan spent the first seven years of his life without an official diagnosis other than a general diagnosis of mentally disabled.  That changed when Ethan was seven and experienced a seizure where he ultimately ended up at Children’s Healthcare of Atlanta (CHOA).  Fortunately for Ethan, the neurologist at CHOA specialized in what would eventually become Ethan’s diagnosis, Mecp2 Duplication Syndrome or M2DS.  M2DS is a rare genetic condition causing many issues such as severe intellectual disabilities, impaired motor function, spasticity, speech, gastrointestinal, and respiratory issues.

Ethan is able to enjoy life in general; he is still mobile and eats soft foods by mouth.  He has had setbacks over the years but he continuously proves how strong he is time and time again.  Ethan’s mobility has declined over the past few years due to severe seizures.  Ethan’s Sunshine makeover includes a wheelchair-accessible bathroom and wheelchair ramp going into his house to make daily life a little easier for everyone.

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Photography by Marcelino Aguilar Photography

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