Brylee was born with a rare disease, Nemaline Rod Myopathy. She spent time in the NICU at Children’s Healthcare of Atlanta. Brylee had a tracheotomy procedure in order to keep her alive. It was also explained to Brylee’s family that kids with severe Nemaline, like Brylee, typically live 18 months and can only use their eyelids since the disease affects the muscles. Brylee has defied the odds, she can move her arms with help, kick her legs, and talks nonstop.