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Damon (DJ)

  • 11 Years Old

  • Spina Bifida & Hydrocephalus

“At 24 weeks gestation my life changed forever. I was told that my baby had spina bifida and that his life would be tumultuous at best. It was suggested that I terminate my pregnancy as it was predicted that his quality of life would be very low. I then sought the opinion of some amazing doctors at Children’s Healthcare of Atlanta who told me that the information I was provided would not be DJ’s story.  

DJ was born at 32 weeks and this amazing young man has not stopped making an impact in my life and the life of others. Not only did he have spina bifida, but he was also diagnosed with hydrocephalus. He struggled through some developmental delays as he did not start walking until 2 years old; BUT HE STARTED WALKING!!! A prior specialist stated he would never walk, but GOD had other plans.

“He may not run as fast or jump as high as other kids, but this kid has never stopped trying and would challenge you every chance he gets.”

He continues to be a scholar maintaining honor roll since pre-K.  He may not run as fast or jump as high as other kids, but this kid has never stopped trying and would challenge you every chance he gets. Like most kids his age he is an avid gamer with his favorite video game being Super Smash Brothers.  He is a sports fanatic who supports all of his home teams: The Falcons, The Hawks, The Braves, and Atlanta United. He is currently a member of an awesome team, The Gwinnett Heat where he plays wheelchair handball, basketball, and football.  Besides collecting all of the Nintendo Amiibo ever made, his life goals are ever evolving. I am so proud of the young man that he has become and I’m excited to see what more GOD has planned for him in the future.” – Rashida, Damon’s mom

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Photography by Niki Murphy

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Marilyn

  • 20 Years Old

  • Morquio syndrome

Marilyn is a smart, beautiful, and outgoing 20-year-old girl who loves BTS, shopping, boba, makeup and hanging out with friends and family!

She was born with Mucopolysaccharidosis (MPS) IV, a rare disease in which the body is missing or does not have enough of an enzyme needed to break down long chains of sugar molecules. Because of MPS she is unable to walk or grow and uses an electric wheelchair. Marilyn wears glasses and hearing aids and has had multiple surgeries to help with her health and mobility.

“This room makeover will bring her so much happiness and give her the independence of not needing help from her parents and siblings.”

In her current room situation, her wheelchair is not able to be brought into the house. She would love to have her wheelchair inside the house so that she is not limited to just being in her room. This room makeover will bring her so much happiness and give her the independence of not needing help from her parents and siblings. Sunshine on a Ranney Day is beyond thrilled to be able to offer wheelchair access into her home and a bedroom of her dreams!

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Photography by Carmen Mari

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Logan

  • 13 Years Old

  • Transverse Myelitis, paraplegia and autonomic dysreflexia

Logan is an active 13 year old that does not let his wheelchair or crutches cramp his style. He loves to be independent and show the world he can! Most of the time he is in his wheelchair, but uses crutches periodically to get up and down steps or to transfer. Logan acquired transverse myelitis in his spine at 5 months of age, which left him with incomplete paraplegia.

He is an athlete! He excels at everything he tries. He has been on a competition swim team, Challenger baseball (where his picture is hanging in the Little League Baseball Hall of Fame in Williamsport, PA), and currently plays on the Jr. Hawks prep basketball team with Blaze Sports. He loves his coaches and teammates and plans on hopefully getting a college scholarship in the future.

Logan is an active 13 year old that does not let his wheelchair or crutches cramp his style.”

Logan’s other interests include the guitar, books, e-sports, content creating on social media platforms and chorus in school. He also thinks he’s funny – he will tell you jokes 24/7 if you let him. Some are funny, some are dumb dad jokes, but he always thinks he’s a pro. He will tell you that when he grows up, his parent’s want him to go to college and maybe become a computer programmer or something in that field, but he wants to become a “sit down comedian.” Sunshine on a Ranney Day can’t wait to give spunky Logan an accessible dream bedroom and bathroom!

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Photography by Your Agent Catelyn

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Lyra

  • 7 Years Old

  • Autism spectrum, sensory processing and speech disorders, global developmental delay

Lyra is an incredible 7 year old kid. She has never met a stranger because everyone is a friend and she cares deeply for them. She loves all things glitter, unicorn, and pink. She is a kind, inclusive, and thoughtful kiddo that brightens the world of everyone she knows. She loves to craft and make things like cards, bracelets, pictures, and trinkets for all of her friends. Lyra lives to help especially in the kitchen and caring for the chickens. Her family adores her and she is her little brother’s hero. 

“She has never met a stranger because everyone is a friend…”

Her family learned that Lyra is autistic when she was two and a half years old at the Marcus center and she has grown so much since then. She receives support from services at McKenna farms and Focus on Function. On top of that, she gets to learn at her own pace and in her preferred learning styles at home. Sunshine on a Ranney Day is excited at the opportunity to transform her basement room into a safe learning/therapy room! Her favorite place to be is outside – swings, picking flowers, riding her scooter, horseback riding at McKenna, and anything with water!

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Photography by Niki Murphy

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Peyton

  • 7 Years Old

  • Cerebral Palsy, Hydrocephalus, Epilepsy

In 2015, Crystal gave birth to twins Peyton and Taylor at 26 weeks. Both only weighed a little over a pound a piece! Taylor had a brain bleed and Peyton suffered bilateral brain bleeds grade 3 and 4. After both came down with hydrocephalus, the girls got a VP shunt to help drain extra cerebrospinal fluid from the brain. All of this resulted in 3 months in the NICU! For the first year of their lives afterward, all seemed normal until they noticed Peyton was ignoring her right hand. They soon began early interventions and before long Peyton was diagnosed with cerebral palsy, affecting the right side of her body. She worked super hard in therapies and was able to take her first steps at 3 years old! Since then, Peyton began having seizures and now has the diagnosis of focal epilepsy as well.

Despite everything she has gone through, she is the sweetest, happiest girl!

Despite everything she has gone through, she is the sweetest, happiest girl! In June of 2022 she underwent a surgery called selective dorsal rhizotomy at Children’s Healthcare of Atlanta. This surgery was intended to relieve some of her symptoms of cerebral palsy and hopefully help her stay mobile and gain more skills. Peyton spent 30 days in the rehab facility at the hospital, working through intensive physical therapy. Even though this surgery requires a lot out of Peyton for the first year post-op, she has stayed so joyful and determined! Her hard work of relearning how to walk again paid off when she took her first independent steps again a week before Halloween. She attends intensive physical therapy 5 days a week and is making great strides towards a full recovery! She is truly my hero,” – Peyton’s mom, Crystal.

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Photography by Carrie Birchfield

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Ciaran & Geordan

  • 19 & 16 Years Old

  • Lebers Congenital Amaurosos, Severely Autistic, Immune System Disorder, Tic Disorder

Ciaran and Geordan were both born with major disabilities. 19 year old Ciaran is totally blind and significantly autistic. On top of that, he has a tic disorder (tourette syndrome) and an immune system disorder. He has no sense of safety and will wake up throughout the night and bang on walls, doors, windows, and even his bed – waking up his brother. 

Geordan is 16 and was also born blind. He was also diagnosed with pretty severe non-verbal autism. Geordan also has no concept of safety, making the level of care required for the two boys quite extensive. With their mom’s recent cancer diagnosis, both parents work tirelessly to care for the boys and give them the fullest life they can.

They are both passionate about music and have an acute sense of hearing for pitch and tone due to their blindness.

Ciaran and Geordan are highly anxious and noise sensitive, so therapy items like swings, trampolines and instruments are very calming to them. They are both passionate about music and have an acute sense of hearing for pitch and tone due to their blindness. Both boys are unique and talented in their own ways, something that is so evident in their passions and skills! The space that Sunshine on a Ranney Day is providing for them will be life-changing in regards to their independence and individual needs.

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Photography by Niki Murphy Photography

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Bryce

  • 5 Years Old

  • Cerebral Palsy

Bryce is a vibrant and remarkable 5 year old boy who lights up the room. Bryce was born at 27 weeks and spent 2 months in the NICU . As an infant, he was diagnosed with Cerebral Palsy. Most of the time, he utilizes a walker and crutches to get around but recently received a wheelchair for long distances. His diagnosis does not deter him from his eagerness to explore and become independent.  He was destined to stand out in the most amazing way while warming the hearts of everyone who crosses his path. His great sense of humor and clever personality is loved and embraced by so many.

“Bryce is the nucleus of their village that keeps everyone connected and in high spirits.”

He attends kindergarten at Still Elementary with his 10 year old sister, London. His family feels so fortunate to have such a strong network of individuals who genuinely care about his mental and physical well-being. Bryce is the nucleus of their village that keeps everyone connected and in high spirits.

Bryce enjoys drawing and telling elaborate stories with fantasy and supernatural themes. He can spend hours creating intricate designs with magnetic blocks and participates in the Horizon Baseball League for children with special needs. We have no doubt that Bryce’s compassionate spirit, inquisitive mind and strong determination will go a long way!

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Photography by Nicole Wood Photography

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Levi

  • 6 Years Old

  • Nemaline Myopathy

Levi is a brilliant, sweet and chatty 7 year old boy who loves Ironman, Spiderman and Sonic the Hedgehog. He is affected by Nemaline Myopathy, a rare form of muscular dystrophy. Because NM affects his muscles, he is unable to walk and instead zips around in a power chair. Levi is unable to breathe adequately on his own, so he has a trach and ventilator to help him.

“…having a space that is adapted to assist him rather than being another obstacle, will be life changing!”

He has had multiple surgeries and hospital stays in his short life in an attempt to keep him healthy and maximize his quality of life. In moments like these, he loves being around his brother Ari for playtime. He still strives for independence and having a space that is adapted to assist him rather than being another obstacle, will be life changing! 

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Photography by Birchfield Photography

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Noah

  • 11 Years Old

  • Rasmussen Encephalitis

Noah was born at 32 weeks with no complications. He was a healthy active kid until 6 yrs old when he had his first seizure episode in the summer of 2018. Doctors couldn’t figure out why Noah was having seizures 10 times a day until an amazing doctor at Children’s Healthcare of Atlanta figured out what was wrong with him. In the spring of 2019, Noah was diagnosed with Rasmussen Encephalitis. In late fall of 2019, he had his first brain surgery (Right Hemispherectomy) and his last seizure.

“Noah has always had an open mind with the outcome of his surgery.”

Today, Noah is now physically disabled on the left side of his body and needs help with day-to-day needs. Noah has always had an open mind with the outcome of his surgery. He remains strong and motivated to regain some of his independence while playing sports with Gwinnett Heat in Gwinnett County. He has physical/occupational therapy 2 times a week, Botox every 4-6 months, and is doing amazing with his long recovery. Noah is super excited to have a space he can call his own where he can move around freely and independently.

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Photography by Niki Murphy Photography

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Jason

  • 19 Years Old

  • Cerebral Palsy & Dystonia

Jason recently completed his freshman year at University of West Georgia! He was born a preemie weighing 2lb 9oz, spent 86 days in the NICU and by age one he was diagnosed with Cerebral Palsy and Dystonia. Today, Jason is wheelchair bound and uses a power wheelchair like a boss! He is completely dependent on someone to assist him with everyday life. Since he is not able to use his arms, he must be fed, but can clearly tell you that the food is too hot, salty or disgusting. So from the neck up Jason is a “typical” 17-year-old!

“…from the neck up Jason is a ‘typical’ 17-year-old!”

For Jason to take a shower, his family needs to undress him in his room and carry him through most of the house to reach the bathroom. Once in the bathroom, he uses a tub chair to shower. However, when Jason goes to camp and respite, he has a lot more independence and ability to do normal things like showering and using the restroom because of the accessibility of the bathrooms there. Because of this, he loves when he goes to camp – so we can’t wait to help him have the same feeling about his own space in his house! 

Aside from going to camp, Jason loves going to the movies with friends and family to watch Marvel movies – of which he is an avid fan! He also loves anything Anime and frequently reads Fan Fiction Anime. His favorite places to visit are New Orleans and DC, but he has dreams of going to New York City! At home, Jason’s younger sister, Junia, frequently keeps him entertained with all kinds of shenanigans.

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Photography by Niki Murphy Photography

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