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Desmond

Written by Clareece Cunningham on . Posted in Artisan Design Studio, Bin There Dump That Atlanta, Cambria, Construction Resources, Meet the Kids, Pulley and Associates, Randall Brothers, Real Floors Commercial.

  • 7 Years Old

  • Spina Bifida, Hydrocephalus, Club Foot, Bowel and Bladder Complications

Desmond has spina bifida, hydrocephalus and autism, but in no way do these diagnoses define him or limit his joy! His parents say is a social and caring person, always looking to greet anyone he meets in passing by shaking hands or giving a hug. Not only is he caring, but he is also fiercely independent and determined to do more things on his own; he knows what he wants! Because of this, he has always been structured in time scheduling and organization since birth. On any given day, you can find Desmond doing art, baking, cooking, out in nature, playing the piano or listening to music. He has such an imagination and loves being silly! Among his goals in life, he wants to be a veterinarian or as he calls it, a ‘pet doctor.’

“He has such an imagination and loves being silly!”

The makeover Desmond will be receiving will ensure that the space not only works for him now, but will continue to accommodate his needs for many years to come. Because of his diagnoses, he has no feeling below his knees. This requires him to use AFO braces. Getting into a bathtub or getting on hard flooring from his wheelchair is very careful work. Though he is independent and mobile with his wheelchair, they have to keep an eye on him as he can lose focus and be distracted in public settings due to his autism. Sunshine on a Ranney Day hopes to create a space for Desmond to feel safe and contained in his own bedroom, as well as a bathroom that gives space for increased independence and comfort.

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Photography by Carmen Mari

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Hudson

Written by Clareece Cunningham on . Posted in Bin There Dump That Atlanta, Cambria, Construction Resources, Meet the Kids, Mohawk, Pulley and Associates, Randall Brothers, Real Floors Commercial, Reynard Custom Homes, ServiceWise Electric, TKO Plumbing Services.

  • 6 Years Old

  • Gaucher Disease Type 2

Hudson is the youngest of 3 children, following his sister Olivia (8) and brother Gavin (10). He was born a happy healthy baby. Around 4 months of age, Hudson’s parents started noticing some differences in him, such as weight loss, difficulty nursing, and choking. After a few significant episodes Hudson was hospitalized around 6 months of age for further investigation. After a 16 day stay in the hospital and lots of testing Hudson was sent home with no answers and told to follow up with genetics. At the young age of 9 months old, on July 2nd, 2018, Hudson’s mom Nichole received the phone call that would forever alter the life their family had once dreamed of. Hudson was diagnosed with a rare, incurable, terminal, genetic disease, Gauchers Disease 2. They were told to put Hudson on hospice, that he would have no quality of life, never walk, talk, or live past the age of 2. Nichole’s response to them….. “but God”.

“You’ve never had a hug ‘till you’ve had a Huddy hug!”

Hudson is now an amazing 5 year old who is living his BEST life! His family has and will continue to go to the ends of the earth for Hudson and his siblings. For the past 4 years they have made the drive to D.C. every 3 to 6 months for Hudson’s geneticist who is the only one in the US willing to give him a chance at life! In fact, Hudson is now being followed by geneticists all over the world as he is re-writing the books and making a way for all the children to come. 

Hudson is a very social kid, who thinks his siblings have hung the moon. He loves sports (football, basketball, and baseball), movies (Toy Story is his favorite), and has a smile that lights up his family’s world! He’s also known to give the BEST hugs. You’ve never had a hug ‘till you’ve had a Huddy hug! 

Unfortunately, Hudson is very susceptible to viruses that have kept him in the hospital ICU for more than half of his life. Because of this, they have had to keep Hudson confined within the walls of their home, limiting his exposure to the outside world. Sunshine on a Ranney Day is honored to bring light and joy into the walls that surround Hudson to help him continue living his BEST life!

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Photography by Vicki Alsup Photography

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Bryce

Written by Clareece Cunningham on . Posted in Construction Resources, Meet the Kids, Mohawk, Pulley and Associates.

  • 5 Years Old

  • Cerebral Palsy

Bryce is a vibrant and remarkable 5 year old boy who lights up the room. Bryce was born at 27 weeks and spent 2 months in the NICU . As an infant, he was diagnosed with Cerebral Palsy. Most of the time, he utilizes a walker and crutches to get around but recently received a wheelchair for long distances. His diagnosis does not deter him from his eagerness to explore and become independent.  He was destined to stand out in the most amazing way while warming the hearts of everyone who crosses his path. His great sense of humor and clever personality is loved and embraced by so many.

“Bryce is the nucleus of their village that keeps everyone connected and in high spirits.”

He attends kindergarten at Still Elementary with his 10 year old sister, London. His family feels so fortunate to have such a strong network of individuals who genuinely care about his mental and physical well-being. Bryce is the nucleus of their village that keeps everyone connected and in high spirits.

Bryce enjoys drawing and telling elaborate stories with fantasy and supernatural themes. He can spend hours creating intricate designs with magnetic blocks and participates in the Horizon Baseball League for children with special needs. We have no doubt that Bryce’s compassionate spirit, inquisitive mind and strong determination will go a long way!

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Photography by Nicole Wood Photography

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Jason

Written by Clareece Cunningham on . Posted in Meet the Kids, Pulley and Associates, Randall Paulson Architects.

  • 19 Years Old

  • Cerebral Palsy & Dystonia

Jason recently completed his freshman year at University of West Georgia! He was born a preemie weighing 2lb 9oz, spent 86 days in the NICU and by age one he was diagnosed with Cerebral Palsy and Dystonia. Today, Jason is wheelchair bound and uses a power wheelchair like a boss! He is completely dependent on someone to assist him with everyday life. Since he is not able to use his arms, he must be fed, but can clearly tell you that the food is too hot, salty or disgusting. So from the neck up Jason is a “typical” 17-year-old!

“…from the neck up Jason is a ‘typical’ 17-year-old!”

For Jason to take a shower, his family needs to undress him in his room and carry him through most of the house to reach the bathroom. Once in the bathroom, he uses a tub chair to shower. However, when Jason goes to camp and respite, he has a lot more independence and ability to do normal things like showering and using the restroom because of the accessibility of the bathrooms there. Because of this, he loves when he goes to camp – so we can’t wait to help him have the same feeling about his own space in his house! 

Aside from going to camp, Jason loves going to the movies with friends and family to watch Marvel movies – of which he is an avid fan! He also loves anything Anime and frequently reads Fan Fiction Anime. His favorite places to visit are New Orleans and DC, but he has dreams of going to New York City! At home, Jason’s younger sister, Junia, frequently keeps him entertained with all kinds of shenanigans.

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Photography by Niki Murphy Photography

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MarQuis

Written by Joe Lane on . Posted in Meet the Kids, Pulley and Associates, Randall Paulson Architects.

  • 18 Years Old

  • Mitochondrial Encephalopathy

MarQuis and his twin brother were born without any complications.  When MarQuis was around 10 months old, he was sick with a typical virus and woke up the next day a completely different child.  The initial thought was that MarQuis had a seizure until he had another episode.  MarQuis and his family traveled to multiple cities for an official diagnosis and finally at the age of 2 after a muscle biopsy MarQuis was diagnosed with mitochondrial disorder.  In 2005 MarQuis had an episode that the doctors did not think he would survive but God had other plans.  Fortunately, that was the final episode. 

“MarQuis has a love for life and speaks his own language to communicate his needs.”

MarQuis is permanently disabled and needs assistance with all daily needs.  MarQuis has a love for life and speaks his own language to communicate his needs.  His house is currently not accessible which is very challenging for his family and caregivers.  MarQuis and his family are so excited for MarQuis to have a space that is truly his own and reflective of his personality!

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Photography by Jennifer Boxley Photography

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Mariah

Written by Joe Lane on . Posted in Meet the Kids, Pulley and Associates.

  • 17 Years Old

  • Brain Tumor

In 2013 when Mariah was nine years old, she had a headache that would not go away.  After several visits to various doctors, Mariah went to the emergency room at Children’s Healthcare of Atlanta.  The emergency room doctor initially thought Mariah had a viral infection but ran a CT scan for confirmation.  The CT scan showed a mass in Mariah’s brain which required a follow-up with a neurosurgeon.  Mariah underwent brain surgery and had the tumor removed and the prognosis was positive, Mariah was expected to recover and unlikely to have any more issues. 

Unfortunately, less than one year later Mariah had a regrowth of the tumor which required another surgery for removal.  After the second surgery, the doctors learned that the tumor was extremely aggressive. The type of tumor is called ATRT and the chances of survival are about 50/50. The doctors explained that Mariah would be extremely sick and spend the majority of the next year in the hospital. Mariah was sick at the beginning of treatment but later in the year she was doing so well that the doctors were baffled at how well she tolerated her therapies and medications. Towards the end of Mariah‘s treatment, she had difficulty walking and increased weakness in her legs.  An MRI revealed that she had extreme swelling building in her brain and it was affecting all of her motor movements. Mariah’s condition continued to worsen, she eventually lost all of her ability to move and was very close to not being able to breathe on her own. Around 2016 Mariah was using a machine to rattle her lungs so that she would not get pneumonia.  She also needed help with all of her needs including going to the bathroom, getting dressed, and turning over in the night. Mariah was almost like a zombie.

“Life has recently become more challenging for our family as Mariah is growing more everyday.”

Since 2016, Mariah’s family has been on a path to help Mariah get better. The treatments that she received for her brain swelling left her with bone integrity issues as well as post-menopausal.  She also needed double hip replacements and hormone replacement. She has had one hip replacement.  Mariah has lived with a lot of pain and sadness as to why this has happened to her. However, God has truly used Mariah to grow her parent’s faith and to touch many lives around her in the community. Mariah continues to show signs of improvement to this day. She has not regained the ability to walk or use of her hands but she is much more alert and spunkier! Currently, Mariah attends therapies twice a week and is active in the church.  She is also involved in a special-needs organization called, Extra Special People. These outlets have provided an abundance of joy for Mariah.  Mariah and her parents are so thankful for their family and community.  They are eager to see what the future holds for Mariah and do not think God is finished healing Mariah. 

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Photography by Jennifer Boxley Photography

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