Meet the Kids Archives - Page 3 of 11 - Sunshine on a Ranney Day

Lyra

Written by Clareece Cunningham on June 30, 2023. Posted in Bin There Dump That Atlanta, Means & Carney Interiors, Meet the Kids, Mohawk, Randall Brothers, Real Floors Commercial, ServiceWise Electric, TKO Plumbing Services.

7 Years Old
Autism spectrum, sensory processing and speech disorders, global developmental delay

Lyra is an incredible 7 year old kid. She has never met a stranger because everyone is a friend and she cares deeply for them. She loves all things glitter, unicorn, and pink. She is a kind, inclusive, and thoughtful kiddo that brightens the world of everyone she knows. She loves to craft and make things like cards, bracelets, pictures, and trinkets for all of her friends. Lyra lives to help especially in the kitchen and caring for the chickens. Her family adores her and she is her little brother’s hero.

“She has never met a stranger because everyone is a friend…”

Her family learned that Lyra is autistic when she was two and a half years old at the Marcus center and she has grown so much since then. She receives support from services at McKenna farms and Focus on Function. On top of that, she gets to learn at her own pace and in her preferred learning styles at home. Sunshine on a Ranney Day is excited at the opportunity to transform her basement room into a safe learning/therapy room! Her favorite place to be is outside – swings, picking flowers, riding her scooter, horseback riding at McKenna, and anything with water!

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Photography by Niki Murphy

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Peyton

Written by Clareece Cunningham on December 8, 2022. Posted in Artisan Design Studio, Bin There Dump That Atlanta, Cambria, Construction Resources, Meet the Kids, Pulley and Associates, Randall Brothers, ServiceWise Electric, TKO Plumbing Services.

7 Years Old
Cerebral Palsy, Hydrocephalus, Epilepsy

In 2015, Crystal gave birth to twins Peyton and Taylor at 26 weeks. Both only weighed a little over a pound a piece! Taylor had a brain bleed and Peyton suffered bilateral brain bleeds grade 3 and 4. After both came down with hydrocephalus, the girls got a VP shunt to help drain extra cerebrospinal fluid from the brain. All of this resulted in 3 months in the NICU! For the first year of their lives afterward, all seemed normal until they noticed Peyton was ignoring her right hand. They soon began early interventions and before long Peyton was diagnosed with cerebral palsy, affecting the right side of her body. She worked super hard in therapies and was able to take her first steps at 3 years old! Since then, Peyton began having seizures and now has the diagnosis of focal epilepsy as well.

“Despite everything she has gone through, she is the sweetest, happiest girl!“

Despite everything she has gone through, she is the sweetest, happiest girl! In June of 2022 she underwent a surgery called selective dorsal rhizotomy at Children’s Healthcare of Atlanta. This surgery was intended to relieve some of her symptoms of cerebral palsy and hopefully help her stay mobile and gain more skills. Peyton spent 30 days in the rehab facility at the hospital, working through intensive physical therapy. Even though this surgery requires a lot out of Peyton for the first year post-op, she has stayed so joyful and determined! Her hard work of relearning how to walk again paid off when she took her first independent steps again a week before Halloween. She attends intensive physical therapy 5 days a week and is making great strides towards a full recovery! “She is truly my hero,” – Peyton’s mom, Crystal.

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Photography by Carrie Birchfield

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Hudson

Written by Clareece Cunningham on December 8, 2022. Posted in Meet the Kids, Reynard Custom Homes.

6 Years Old
Gaucher Disease Type 2

Hudson is the youngest of 3 children, following his sister Olivia (8) and brother Gavin (10). He was born a happy healthy baby. Around 4 months of age, Hudson’s parents started noticing some differences in him, such as weight loss, difficulty nursing, and choking. After a few significant episodes Hudson was hospitalized around 6 months of age for further investigation. After a 16 day stay in the hospital and lots of testing Hudson was sent home with no answers and told to follow up with genetics. At the young age of 9 months old, on July 2nd, 2018, Hudson’s mom Nichole received the phone call that would forever alter the life their family had once dreamed of. Hudson was diagnosed with a rare, incurable, terminal, genetic disease, Gauchers Disease 2. They were told to put Hudson on hospice, that he would have no quality of life, never walk, talk, or live past the age of 2. Nichole’s response to them….. “but God”.

“You’ve never had a hug ‘till you’ve had a Huddy hug!”

Hudson is now an amazing 5 year old who is living his BEST life! His family has and will continue to go to the ends of the earth for Hudson and his siblings. For the past 4 years they have made the drive to D.C. every 3 to 6 months for Hudson’s geneticist who is the only one in the US willing to give him a chance at life! In fact, Hudson is now being followed by geneticists all over the world as he is re-writing the books and making a way for all the children to come.

Hudson is a very social kid, who thinks his siblings have hung the moon. He loves sports (football, basketball, and baseball), movies (Toy Story is his favorite), and has a smile that lights up his family’s world! He’s also known to give the BEST hugs. You’ve never had a hug ‘till you’ve had a Huddy hug!

Unfortunately, Hudson is very susceptible to viruses that have kept him in the hospital ICU for more than half of his life. Because of this, they have had to keep Hudson confined within the walls of their home, limiting his exposure to the outside world. Sunshine on a Ranney Day is honored to bring light and joy into the walls that surround Hudson to help him continue living his BEST life!

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Photography by Vicki Alsup Photography

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Ciaran & Geordan

Written by Clareece Cunningham on December 8, 2022. Posted in Bin There Dump That Atlanta, Meet the Kids, Mohawk, Randall Brothers, Real Floors Commercial, ServiceWise Electric.

19 & 16 Years Old
Lebers Congenital Amaurosos, Severely Autistic, Immune System Disorder, Tic Disorder

Ciaran and Geordan were both born with major disabilities. 19 year old Ciaran is totally blind and significantly autistic. On top of that, he has a tic disorder (tourette syndrome) and an immune system disorder. He has no sense of safety and will wake up throughout the night and bang on walls, doors, windows, and even his bed – waking up his brother.

Geordan is 16 and was also born blind. He was also diagnosed with pretty severe non-verbal autism. Geordan also has no concept of safety, making the level of care required for the two boys quite extensive. With their mom’s recent cancer diagnosis, both parents work tirelessly to care for the boys and give them the fullest life they can.

“They are both passionate about music and have an acute sense of hearing for pitch and tone due to their blindness.“

Ciaran and Geordan are highly anxious and noise sensitive, so therapy items like swings, trampolines and instruments are very calming to them. They are both passionate about music and have an acute sense of hearing for pitch and tone due to their blindness. Both boys are unique and talented in their own ways, something that is so evident in their passions and skills! The space that Sunshine on a Ranney Day is providing for them will be life-changing in regards to their independence and individual needs.

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Photography by Niki Murphy Photography

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Bryce

Written by Clareece Cunningham on December 8, 2022. Posted in Bin There Dump That Atlanta, Cambria, Construction Resources, Meet the Kids, Mohawk, Pulley and Associates, Randall Brothers, Real Floors Commercial, ServiceWise Electric, TKO Plumbing Services.

5 Years Old
Cerebral Palsy

Bryce is a vibrant and remarkable 5 year old boy who lights up the room. Bryce was born at 27 weeks and spent 2 months in the NICU . As an infant, he was diagnosed with Cerebral Palsy. Most of the time, he utilizes a walker and crutches to get around but recently received a wheelchair for long distances. His diagnosis does not deter him from his eagerness to explore and become independent. He was destined to stand out in the most amazing way while warming the hearts of everyone who crosses his path. His great sense of humor and clever personality is loved and embraced by so many.

“Bryce is the nucleus of their village that keeps everyone connected and in high spirits.”

He attends kindergarten at Still Elementary with his 10 year old sister, London. His family feels so fortunate to have such a strong network of individuals who genuinely care about his mental and physical well-being. Bryce is the nucleus of their village that keeps everyone connected and in high spirits.

Bryce enjoys drawing and telling elaborate stories with fantasy and supernatural themes. He can spend hours creating intricate designs with magnetic blocks and participates in the Horizon Baseball League for children with special needs. We have no doubt that Bryce’s compassionate spirit, inquisitive mind and strong determination will go a long way!

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Photography by Nicole Wood Photography

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Levi

Written by Clareece Cunningham on December 8, 2022. Posted in Bin There Dump That Atlanta, Cambria, Chattahoochee Tech Design Program, Construction Resources, Meet the Kids, Mohawk, Pulley and Associates, Randall Brothers, Real Floors Commercial, ServiceWise Electric, TKO Plumbing Services.

6 Years Old
Nemaline Myopathy

Levi is a brilliant, sweet and chatty 7 year old boy who loves Ironman, Spiderman and Sonic the Hedgehog. He is affected by Nemaline Myopathy, a rare form of muscular dystrophy. Because NM affects his muscles, he is unable to walk and instead zips around in a power chair. Levi is unable to breathe adequately on his own, so he has a trach and ventilator to help him.

“…having a space that is adapted to assist him rather than being another obstacle, will be life changing!”

He has had multiple surgeries and hospital stays in his short life in an attempt to keep him healthy and maximize his quality of life. In moments like these, he loves being around his brother Ari for playtime. He still strives for independence and having a space that is adapted to assist him rather than being another obstacle, will be life changing!

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Photography by Birchfield Photography

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Ellie

Written by Clareece Cunningham on December 8, 2022. Posted in Cambria, Construction Resources, Meet the Kids, Mohawk, Pulley and Associates, Real Floors Commercial.

4 Years Old
Pontocerebellar Hypoplasia

Ellie was a perfectly healthy baby during prenatal check ups and Jenn (Ellie’s momma) had a wonderful pregnancy. However, the last two minutes of labor changed everything. She swallowed Meconium, got stuck in the birth canal, and had the umbilical cord wrapped around her neck. She was blue and limp when she arrived. It took two minutes to revive her and just in that amount of time, she lost oxygen to her brain causing injury to her cerebellum, which controls fine motor skills and balance. Since Ellie’s birth, her family has been learning and handling challenge after challenge.

“It’s hard to believe the first year of her life they tried just about everything to make her smile or laugh but now it’s effortless!“

Due to her developmental delay and strange movement disorder (later diagnosed as dystonia) her Neurologist conducted a genetic test for Pontocerebellar Hypoplasia type 2A. Soon after her first birthday in April 2019, they received the positive results. This means both parents passed the gene to Ellie causing her cerebellum and half of her brain stem to stop growing in the womb. So now, on top of her birth injury, she also has this genetic mutation. It’s such a rare disease that doctors really don’t know a prognosis and only about 100 people have been documented having this gene. Some children pass away during childhood years, however, some have lived well into her twenties.

What we DO know is Ellie is the happiest baby in the world! It’s hard to believe the first year of her life they tried just about everything to make her smile or laugh but now it’s effortless! She is the silliest girl and keeps everyone laughing. She loves any and all music, including the jams on Cocomelon and when her Daddy plays guitar for her! Even though she is technically “non-verbal” she definitely communicates in her own little language and is such a social butterfly. Water is at the top of her favorites because it gives her freedom and some independence. When in her special float, she is able to move freely by herself and is not dependent on help.

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Photography by Christina Elmore Photography

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Noah

11 Years Old
Rasmussen Encephalitis

Noah was born at 32 weeks with no complications. He was a healthy active kid until 6 yrs old when he had his first seizure episode in the summer of 2018. Doctors couldn’t figure out why Noah was having seizures 10 times a day until an amazing doctor at Children’s Healthcare of Atlanta figured out what was wrong with him. In the spring of 2019, Noah was diagnosed with Rasmussen Encephalitis. In late fall of 2019, he had his first brain surgery (Right Hemispherectomy) and his last seizure.

“Noah has always had an open mind with the outcome of his surgery.”

Today, Noah is now physically disabled on the left side of his body and needs help with day-to-day needs. Noah has always had an open mind with the outcome of his surgery. He remains strong and motivated to regain some of his independence while playing sports with Gwinnett Heat in Gwinnett County. He has physical/occupational therapy 2 times a week, Botox every 4-6 months, and is doing amazing with his long recovery. Noah is super excited to have a space he can call his own where he can move around freely and independently.

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Photography by Niki Murphy Photography

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Jason

Written by Clareece Cunningham on December 8, 2022. Posted in Bin There Dump That Atlanta, Cambria, Construction Resources, Meet the Kids, Mohawk, Pulley and Associates, Randall Brothers, Randall Paulson Architects, Real Floors Commercial, ServiceWise Electric, TKO Plumbing Services.

19 Years Old
Cerebral Palsy & Dystonia

Jason recently completed his freshman year at University of West Georgia! He was born a preemie weighing 2lb 9oz, spent 86 days in the NICU and by age one he was diagnosed with Cerebral Palsy and Dystonia. Today, Jason is wheelchair bound and uses a power wheelchair like a boss! He is completely dependent on someone to assist him with everyday life. Since he is not able to use his arms, he must be fed, but can clearly tell you that the food is too hot, salty or disgusting. So from the neck up Jason is a “typical” 17-year-old!

“…from the neck up Jason is a ‘typical’ 17-year-old!”

For Jason to take a shower, his family needs to undress him in his room and carry him through most of the house to reach the bathroom. Once in the bathroom, he uses a tub chair to shower. However, when Jason goes to camp and respite, he has a lot more independence and ability to do normal things like showering and using the restroom because of the accessibility of the bathrooms there. Because of this, he loves when he goes to camp – so we can’t wait to help him have the same feeling about his own space in his house!

Aside from going to camp, Jason loves going to the movies with friends and family to watch Marvel movies – of which he is an avid fan! He also loves anything Anime and frequently reads Fan Fiction Anime. His favorite places to visit are New Orleans and DC, but he has dreams of going to New York City! At home, Jason’s younger sister, Junia, frequently keeps him entertained with all kinds of shenanigans.

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Photography by Niki Murphy Photography

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Cade

Written by Joe Lane on November 28, 2022. Posted in Bin There Dump That Atlanta, Cambria, Construction Resources, Meet the Kids, Pulley and Associates, Randall Brothers, Real Floors Commercial, ServiceWise Electric, TKO Plumbing Services.

20 Years Old
Spinal Injury C4 Incomplete

Cade graduated highschool in May of 2020. In January of 2021, he was a passenger during a motor vehicle accident and was ejected from the vehicle. Miraculously, he survived. He spent 5 days in a local ICU and was transferred to Shepherds Spinal Center in Atlanta where he spent one week in ICU followed by 9 weeks of inpatient rehab for a spinal cord injury. He was given the diagnosis of C4 incomplete (when damage is dealt about mid-way down the cervical spinal cord), spent 6 weeks on a vent, and is now in a power wheelchair to get around day to day.

“Miraculously, he survived.”

Cade is making progress towards being functional, but right now still requires around the clock care for someone to bathe him, feed him, etc.. even scratch his “itches”! His parents were able to remodel their bathroom so that he can shower there, but his current room is tough for him to get around in and he can’t get in his bathroom. He plans on going to college online at Georgia Highlands for the fall of 2022. While there, he will be studying Psychology and Computer Animation, perfectly in line with his interests of Anime, Star Wars and cars. The world is blessed to still have Cade in it and we are so excited to help make modifications that will allow him to be more independent!