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Juan

Written by Garrett Nantz on . Posted in Meet the Kids, Randall Paulson Architects.

  • 16 Years Old

  • Cerebral Palsy

Our next recipient of a dreamy home makeover is Juan. This compassionate sixteen year-old is most happiest when he is listening to music, watching movies or playing video games. He is very vigilant about taking care of his things and incredibly grateful for the loving care his mother provides him. Juan was born premature and resided in the NICU for two months. He was considered developmentally delayed as an infant and diagnosed with cerebral palsy as a toddler.

Like most teenage boys, he is taller and heavier than his petite mother. This creates a substantial challenge when transferring him from the wheelchair to the bathroom and into the tub.

Juan’s medical, therapeutic and care needs are extensive and carry a significant expense. He receives special education services at school and attends physical therapy three times per week. His mother is a single parent working full time to provide him with the support and services he needs to achieve his goals. In addition to requiring extensive therapy, he also needs assistance in dressing, bathing, and getting in and out of the car and shower. Like most teenage boys, he is taller and heavier than his petite mother. This creates a substantial challenge when transferring him from the wheelchair to the bathroom and into the tub. The bathroom is too narrow for both of them and is not designed for an individual with special needs. As a result, she has to bathe him in his bed. Not only is this uncomfortable, but Juan also desires more privacy as he nears adulthood. His mom’s greatest wish is being able to gift him a home in which he will be able to achieve independence as an adult. Juan’s greatest wish is to reduce the painful burden of lifting and carrying him that his mother endures selflessly.

Sunshine on a Ranney Day is privileged to have the opportunity to make Juan’s dream come true! With the generous support of our donors, we will be renovating his home to expand his bedroom and transform his tiny bathroom into a fully adaptable bathroom that will make life a lot easier for both Juan and his mom. We hope this gift will lighten their burdens, lift their spirits and evokes endless smiles!

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Photography by Sweet Life Photography by Kim

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Carson

Written by Garrett Nantz on . Posted in Artisan Design Studio, Meet the Kids, The Wall Nut.

  • 9 Years Old

  • Autism, Sensory Processing Disorder

As a fan of SpongeBob, sea creatures, aquatic life, Shark Week, and his multiple pets, Carson is like most nine-year-old boys. His favorite things to do are swinging, jumping, and climbing. Carson also likes small places, like a tent or under the bed, to hide if he’s having a bad day. Like all mothers and as a single mother of two, Carson’s mother is concerned with balancing activity and safety.  Having been diagnosed with sensory processing disorder, SPD at age three, and recently diagnosed with Autism, Carson is a sensory seeker who likes to move all of the time. He has received occupational therapy for SPD and worked on fine motor skills. They also worked with the vestibular system for some motor functions of the head and posture, and the proprioceptive senses to help combine sensory information from the inner ear to receptors in the muscles and the joint-supporting ligaments for stance.

Having been diagnosed with sensory processing disorder, SPD at age three, and recently diagnosed with Autism, Carson is a sensory seeker who likes to move all of the time.

As Carson gets older, it will be even more important to have a safe space of his own, including appropriate sensory stimulation.  A custom sensory room from Sunshine on a Ranney Day will give Carson what he needs to be and grow happier and healthier. Together with his family, he will better enjoy their three cats, bearded dragon, and beta fish and will have spent some energy so he can sit down and watch Shark Week like other kids his age.

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Photography by Pear Tree Photography

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Harper

Written by Joe Lane on . Posted in Means & Carney Interiors, Meet the Kids.

  • 4 Years Old

  • PTHS – Pitt Hopkins Syndrome

This tiny diva is Harper Grace.  Harper’s gorgeous smile and contagious laugh can truly light up a room.  Although she isn’t able to communicate verbally, it’s amazing how much she can tell us with just a look.  Just by being around her, you can tell that she may be tiny, but she has a big heart and big purpose.

After a fairly uneventful twin pregnancy, Harper and her brother Nolan were born on May 31, 2015.  At around a year of age, while her brother was meeting his milestones, Harper was falling further and further behind.  After going through several rounds of tests, a neurologist diagnosed Harper with Pitt Hopkins Syndrome (PTHS), which is a rare genetic disorder affecting a specific gene in chromosome 18, called TCF4.  There are roughly only 700 diagnosed cases worldwide.  PTHS is characterized by extreme developmental delay, gastrointestinal issues and a lack of speech. 

“Harper’s gorgeous smile and contagious laugh can truly light up a room.  Although she isn’t able to communicate verbally, it’s amazing how much she can tell us with just a look.“

Harper is four and is striving to achieve developmental milestones.  Because of her developmental delays and motor planning issues, she is nonverbal but is striving to learn how to walk. She participates in speech, occupational, physical and hippotherapy where she is learning to accomplish independent movement and is using an augmentative communication device to express her needs and thoughts. Harper has little body awareness and doesn’t have the necessary protective instincts to help keep herself safe when she’s playing and sleeping. 

Harper, along with her twin brother, has a 2 year old little sister, Mia. Harper is in special needs pre-K at Whitlow Elementary and loves school and seeing her friends and teachers.  She’s a very social little girl, who likes to swing and swim and play with toys that are musical and light up.  She adores music and watching movies with a great soundtrack!

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Photography by Kristi Weaver Photography

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