Chattahoochee Tech Design Program Archives

Levi

Written by Clareece Cunningham on December 8, 2022. Posted in Chattahoochee Tech Design Program, Meet the Kids.

6 Years Old
Nemaline Myopathy

Levi is a brilliant, sweet and chatty 7 year old boy who loves Ironman, Spiderman and Sonic the Hedgehog. He is affected by Nemaline Myopathy, a rare form of muscular dystrophy. Because NM affects his muscles, he is unable to walk and instead zips around in a power chair. Levi is unable to breathe adequately on his own, so he has a trach and ventilator to help him.

“…having a space that is adapted to assist him rather than being another obstacle, will be life changing!”

He has had multiple surgeries and hospital stays in his short life in an attempt to keep him healthy and maximize his quality of life. In moments like these, he loves being around his brother Ari for playtime. He still strives for independence and having a space that is adapted to assist him rather than being another obstacle, will be life changing!

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Photography by Birchfield Photography

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Anthony Jr. & Lyric

Written by Joe Lane on January 7, 2022. Posted in Chattahoochee Tech Design Program, Meet the Kids.

14 & 6 Years Old
Quad Cerebal Palsy, Epilepsy, Autism

Anthony Jr. was born on December 15, 2005. He has cerebral palsy and epilepsy caused by brain-damaged experienced during a complicated and difficult birth. Anthony is non-verbal and wheelchair-dependent. He is a vibrant child and loves his family. Anthony enjoys music which is no surprise since he comes from a musical family.

Despite all of Anthony Jr.’s challenges he can communicate and enjoys a good laugh. He shows a love for life and what it means to fully live in the moment. Anthony Jr.’s love for life also keeps his entire family going.

“He is always the energy in the room that encourages others to be ok in moments of darkness.”

Lyric, younger brother to Anthony Jr., was born on December 11, 2015. Lyric was diagnosed with autism in 2017. He is an extremely intelligent little boy and continues to amaze everyone with what he knows. He enjoys music just like his older brother, Anthony Jr. Lyric also enjoys being outdoors and interacting with people.

Lyric faces challenges every day and he works really hard to do his best. He is always the energy in the room that encourages others to be ok in moments of darkness. He is such a loving little boy just like Anthony Jr. Lyric tries his hardest to help his big brother. He watches others take care of Anthony Jr. and attempts to mimic their actions.

Lyric is truly what helps Anthony Jr. continue to smile! Lyric and Anthony Jr. represent brotherly love like no others!

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Photography by Vicki Alsup Photography

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Rheagan

Written by Garrett Nantz on June 26, 2021. Posted in Chattahoochee Tech Design Program, Meet the Kids.

8 Years Old
Spina Bifida

One often sees pinwheels on little girl’s bikes in parks and neighborhoods. Eight-year-old Rheagan has them on her wheelchair, which is perfect as its symbolism is “to turn one’s luck around.” While her pinwheels may bring joy, Rheagan’s bright, infectious personality brightens every place she goes. Born with Spina Bifida, she has bilateral clubbed feet, tibial torsion, and hip dislocation. After numerous surgeries on her legs, and although she has no movement below the knee, Rheagan is able to use her wheelchair to get around independently. She wears AFOs on both of her legs and can move from her wheelchair to other seats independently. In school, Rheagan excels at reading and science, and with her independence and strong will participates in gymnastics and WCMX at her local skatepark.

After numerous surgeries on her legs, and although she has no movement below the knee, Rheagan is able to use her wheelchair to get around independently

When Rheagan gets home, her independence ends. Without an accessible sink, she cannot wash her own hands, and someone has to bring a cup of water to her for teeth brushing. While most kids her age have mastered an independent shower, Rheagan must be lifted into the tub and requires assistance to be safe. Like most girls, Rheagan wants to choose what to wear, but cannot reach her closet as her room is not accessible in many ways.

As Rheagan approaches her “tween” years, it would be fabulous if she had a safe, accessible space of her own to enjoy her favorite Star Wars, Disney Descendants, and Pokémon interests. The wheelchair doesn’t hold Rheagan back, and after a Sunshine on a Ranney Day room makeover, nothing will. Pinwheels are the perfect decor for her wheelchair!