Light shows can be quite mesmerizing, and at the end of the day, ten-year-old Caitlin loves to go to her room where various lights provide her own nightly “light show.” Caitlin is severely developmentally delayed, non-verbal, unable to walk, requires around the clock care, and is at risk due to her yet to be determined mitochondrial disease/disorder. From her first seizure at four months old to now, Caitlin’s ten short years have been a whirlwind of medical procedures and surgeries. As Caitlin grows older, the impact of her conditions will cause further delays and her system will begin to deteriorate.
Although she is non-verbal, Caitlin has no trouble letting people know how she feels or what she wants by giving a cute, little yell! She loves to be on the move, both in her wheelchair and the car. Caitlin’s family feels fortunate to have been able to move into a one-story home where everything is on one level, and she is blessed with wonderful grandparents, friends, and neighbors who love and adore her.