Harrison
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17 Years Old
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PURA Syndrome
This blonde haired, blue-eyed cutie is Harrison. He is 17 years old and captures the heart of anyone he comes in contact with. He loves music, motorcycles, rollercoasters, being outdoors, dancing, swimming and using his iPad and enjoying the company of other people. He has played adapted baseball since he was five years old and participates in other adapted sports through a buddy program at his high school. Born prematurely, Harrison experienced significant health concerns, seizures and symptoms requiring hospitalizations and surgeries. Despite tons of testing, nothing brought answers until he was 14-years old. After experiencing traumatic violent seizures that lead to fractured bones and teeth, his parents sought out for answers through a DNA Sequencing test and he was diagnosed with PURA Syndrome. At the time, Harrison was only the twenty first case recorded throughout the world, although now there are about 301 known cases.
After experiencing traumatic violent seizures that lead to fractured bones and teeth, his parents sought out for answers through a DNA Sequencing test and he was diagnosed with PURA Syndrome.
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