Tag: In Progress

Alex

  • 16 Years Old

  • Dystonic & Spastic Cerebral Palsy

If you watch a teen boy check himself out in the mirror before he heads out for the day, you may see him inspect carefully, fix details and then give a little nod to himself for a job well done. Alexander is no different. As a 16-year-old boy, he wants more than anything to take good care of himself. Like most teens, he loves music, dancing, and watching movies with his family. Alex lives with dystonic and spastic cerebral palsy. He uses a wheelchair to mobilize himself and a walker for exercise. Alex has intellectual and developmental disabilities, placing his cognitive and emotional maturity around age 10-12.

An accessible bathroom will alleviate the fear of injury and help the family achieve their goal of facilitating as much independence as possible

Alex has grown into his adult body and his emerging maturity has him striving for independence when it comes to bathroom use and personal hygiene. Not only is Alex’s bathroom not conducive to his caring for himself; but, it also is not at all accessible for caregivers to assist. The toilet grab bar is jerry-rigged between the toilet and tub and often comes loose, posing one of many safety issues in his bathroom. A small wall sink was put in to allow the wheelchair to fit, but when Alex leans on it to reach for faucets, it is a great concern that it will pull off the wall.

Alex does not consider personal hygiene a chore; he is eager to take care of himself and takes great pride in his appearance and independence. An accessible bathroom will alleviate the fear of injury and help the family achieve their goal of facilitating as much independence as possible. Everyone looks forward to when Alex can look in his own mirror and give a little nod of self-approval for a job well done.

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Aidan & Brendan

  • 15 Years Old

  • Autism

Moms of boys remember the time when their little boy’s height surpassed their own. They mark a wall, the boy talks smack to mom, and they laugh as if it’s a right of passage. It is no different for 15-year-old twins Aidan and Brendan. At 6 feet and nearly 6 feet, they present the picture of grown men next to petite 5’3″ mom. Born at 28 weeks, the twins have differing degrees of Autism. Aidan is more moderate; with his developmental delays, he functions at an eight-year-old level. Brendan is non-verbal, and communication is challenging as he struggles to learn signs. Developmentally, he is in the 3 to 4-year-old range, and also has epilepsy.

Born at 28 weeks, the twins have differing degrees of Autism.

In addition to school and therapy, the boys enjoy traditional favorite past times. Aidan loves Pokemon, Toystory, and Minecraft. He loves learning about the weather; but, he finds great comfort in his favorite weighted blanket when thunderstorms roll around. Like so many teen boys, Brendan is a UGA fan, “Go Dawgs!” and loves to play golf. You can also find him enjoying the perennial favorites, Wheel of Fortune and Jeopardy, on evening TV. Both boys share in the excitement of Christmas as we all know Santa knows no age.

A dream bedroom makeover will maximize the space and make it comfortable for young men — Sunshine On A Ranney Day’s specialty.

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Rheagan

  • 8 Years Old

  • Spina Bifida

One often sees pinwheels on little girl’s bikes in parks and neighborhoods. Eight-year-old Rheagan has them on her wheelchair, which is perfect as its symbolism is “to turn one’s luck around.” While her pinwheels may bring joy, Rheagan’s bright, infectious personality brightens every place she goes. Born with Spina Bifida, she has bilateral clubbed feet, tibial torsion, and hip dislocation. After numerous surgeries on her legs, and although she has no movement below the knee, Rheagan is able to use her wheelchair to get around independently. She wears AFOs on both of her legs and can move from her wheelchair to other seats independently. In school, Rheagan excels at reading and science, and with her independence and strong will participates in gymnastics and WCMX at her local skatepark.

After numerous surgeries on her legs, and although she has no movement below the knee, Rheagan is able to use her wheelchair to get around independently

When Rheagan gets home, her independence ends. Without an accessible sink, she cannot wash her own hands, and someone has to bring a cup of water to her for teeth brushing. While most kids her age have mastered an independent shower, Rheagan must be lifted into the tub and requires assistance to be safe. Like most girls, Rheagan wants to choose what to wear, but cannot reach her closet as her room is not accessible in many ways.

As Rheagan approaches her “tween” years, it would be fabulous if she had a safe, accessible space of her own to enjoy her favorite Star Wars, Disney Descendants, and Pokémon interests. The wheelchair doesn’t hold Rheagan back, and after a Sunshine on a Ranney Day room makeover, nothing will. Pinwheels are the perfect decor for her wheelchair!

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Photography by Niki Murphy Photography

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Raynel

  • 16 Years Old

  • Spastic Quadriplegic Meningitis

This strikingly handsome young man may look familiar to many of our Sunshine on a Ranney Day followers as he was one of the children we worked with in our early years. Raynel received our twenty-third designer room makeover. At the time, he was only nine. He was delighted with his vibrant videogame themed room which was expanded to make room for his medical equipment and increase his ability to move around. Now, Raynel is nearing his sixteenth birthday and has become an incredible young man. Not only has Raynel grown quite a bit since his last makeover, but his family also had to move. His current room and bathroom are too narrow to meet his needs for transferring, showering and moving throughout the home. He is currently in need of a full adapted bathroom that will allow his chair to be rolled into the shower and decrease the physical strain of lifting him over the tub and supporting him during the bathing routine.

His current room and bathroom are too narrow to meet his needs for transferring, showering and moving throughout the home.

Raynel has Spastic Quadriplegic Meningitis which was contracted at the age of four. The effects of the infection led to many permanent disorders including obstructive hydrocephalus, cerebral palsy, a neurogenic bladder, developmental delay and hearing loss. He is fully dependent for all activities of daily living. Raynel has had a cochlear implant and is learning to use American Sign Language to communicate. His parents are learning ASL along with him so that they can continue to communicate with him as his language advances.

Sunshine on a Ranney Day is ecstatic over being able to see how much Raynel has grown and continue to support him as his needs change. He is truly extraordinary and continues to inspire us with his strength, positivity and illuminating smile. We are eager to complete these renovations and see him smile once again!

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Photography by Niki Murphy Photography

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Helen

  • 14 Years Old

  • Infantile-Onset Pompe Disease

The name Helen means Shining Light, and that she is. With her fair skin and sweet grin, the room lights up when Helen enters in her wheelchair. Helen has Infantile-onset Pompe disease, which caused the development of cardiomyopathy, progressive muscle weakness, neuromuscular scoliosis, and impairment of respiratory function. She is dependant on others for all aspects of care as she is unable to ambulate and currently maintains very limited upper motor strength to operate her power wheelchair. She receives all of her nutrition and hydration via a GJ-tube.

Helen has Infantile-onset Pompe disease, which caused the development of cardiomyopathy, progressive muscle weakness, neuromuscular scoliosis, and impairment of respiratory function.

With the high level of care required by Helen, her family faces many obstacles in their home. Due to her Pompe disease, she has severe osteoporosis and has suffered fractures from minimal force. One of Helen’s more recent fractures occurred when a caregiver transferred her in her inaccessible home.

Day-to-day life is complicated. On top of it all, as a 14-year-old girl, Helen is too big to be safely bathed. A bedroom and bathroom from Sunshine on a Ranney Day would bring Helen’s family safety and peace of mind and possibly create a little more time for Helen to get out and shine.

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Photography by Maddy Em Photography

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