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Tag: 2023

Hudson

Written by Clareece Cunningham on . Posted in Meet the Kids.

  • 4 Years Old

  • Gaucher Disease Type 2

Hudson is the youngest of 3 children, following his sister Olivia (8) and brother Gavin (10). He was born a happy healthy baby. Around 4 months of age, Hudson’s parents started noticing some differences in him, such as weight loss, difficulty nursing, and choking. After a few significant episodes Hudson was hospitalized around 6 months of age for further investigation. After a 16 day stay in the hospital and lots of testing Hudson was sent home with no answers and told to follow up with genetics. At the young age of 9 months old, on July 2nd, 2018, Hudson’s mom Nichole received the phone call that would forever alter the life their family had once dreamed of. Hudson was diagnosed with a rare, incurable, terminal, genetic disease, Gauchers Disease 2. They were told to put Hudson on hospice, that he would have no quality of life, never walk, talk, or live past the age of 2. Nichole’s response to them….. “but God”.

“You’ve never had a hug ‘till you’ve had a Huddy hug!”

Hudson is now an amazing 5 year old who is living his BEST life! His family has and will continue to go to the ends of the earth for Hudson and his siblings. For the past 4 years they have made the drive to D.C. every 3 to 6 months for Hudson’s geneticist who is the only one in the US willing to give him a chance at life! In fact, Hudson is now being followed by geneticists all over the world as he is re-writing the books and making a way for all the children to come. 

Hudson is a very social kid, who thinks his siblings have hung the moon. He loves sports (football, basketball, and baseball), movies (Toy Story is his favorite), and has a smile that lights up his family’s world! He’s also known to give the BEST hugs. You’ve never had a hug ‘till you’ve had a Huddy hug! 

Unfortunately, Hudson is very susceptible to viruses that have kept him in the hospital ICU for more than half of his life. Because of this, they have had to keep Hudson confined within the walls of their home, limiting his exposure to the outside world. Sunshine on a Ranney Day is honored to bring light and joy into the walls that surround Hudson to help him continue living his BEST life!

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Photography by Vicki Alsup Photography

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Ciaran & Geordan

Written by Clareece Cunningham on . Posted in Meet the Kids.

  • 19 & 16 Years Old

  • Lebers Congenital Amaurosos, Severely Autistic, Immune System Disorder, Tic Disorder

Ciaran and Geordan were both born with major disabilities. 19 year old Ciaran is totally blind and significantly autistic. On top of that, he has a tic disorder (tourette syndrome) and an immune system disorder. He has no sense of safety and will wake up throughout the night and bang on walls, doors, windows, and even his bed – waking up his brother. 

Geordan is 16 and was also born blind. He was also diagnosed with pretty severe non-verbal autism. Geordan also has no concept of safety, making the level of care required for the two boys quite extensive. With their mom’s recent cancer diagnosis, both parents work tirelessly to care for the boys and give them the fullest life they can.

“They are both passionate about music and have an acute sense of hearing for pitch and tone due to their blindness.“

Ciaran and Geordan are highly anxious and noise sensitive, so therapy items like swings, trampolines and instruments are very calming to them. They are both passionate about music and have an acute sense of hearing for pitch and tone due to their blindness. Both boys are unique and talented in their own ways, something that is so evident in their passions and skills! The space that Sunshine on a Ranney Day is providing for them will be life-changing in regards to their independence and individual needs.

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Photography by Niki Murphy Photography

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Bryce

Written by Clareece Cunningham on . Posted in Meet the Kids.

  • 5 Years Old

  • Cerebral Palsy

Bryce is a vibrant and remarkable 5 year old boy who lights up the room. Bryce was born at 27 weeks and spent 2 months in the NICU . As an infant, he was diagnosed with Cerebral Palsy. Most of the time, he utilizes a walker and crutches to get around but recently received a wheelchair for long distances. His diagnosis does not deter him from his eagerness to explore and become independent.  He was destined to stand out in the most amazing way while warming the hearts of everyone who crosses his path. His great sense of humor and clever personality is loved and embraced by so many.

“Bryce is the nucleus of their village that keeps everyone connected and in high spirits.”

He attends kindergarten at Still Elementary with his 10 year old sister, London. His family feels so fortunate to have such a strong network of individuals who genuinely care about his mental and physical well-being. Bryce is the nucleus of their village that keeps everyone connected and in high spirits.

Bryce enjoys drawing and telling elaborate stories with fantasy and supernatural themes. He can spend hours creating intricate designs with magnetic blocks and participates in the Horizon Baseball League for children with special needs. We have no doubt that Bryce’s compassionate spirit, inquisitive mind and strong determination will go a long way!

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Photography by Nicole Wood Photography

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Levi

Written by Clareece Cunningham on . Posted in Meet the Kids.

  • 6 Years Old

  • Nemaline Myopathy

Levi is a brilliant, sweet and chatty 7 year old boy who loves Ironman, Spiderman and Sonic the Hedgehog. He is affected by Nemaline Myopathy, a rare form of muscular dystrophy. Because NM affects his muscles, he is unable to walk and instead zips around in a power chair. Levi is unable to breathe adequately on his own, so he has a trach and ventilator to help him.

“…having a space that is adapted to assist him rather than being another obstacle, will be life changing!”

He has had multiple surgeries and hospital stays in his short life in an attempt to keep him healthy and maximize his quality of life. In moments like these, he loves being around his brother Ari for playtime. He still strives for independence and having a space that is adapted to assist him rather than being another obstacle, will be life changing! 

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Photography by Birchfield Photography

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Noah

Written by Clareece Cunningham on . Posted in Meet the Kids.

  • 11 Years Old

  • Rasmussen Encephalitis

Noah was born at 32 weeks with no complications. He was a healthy active kid until 6 yrs old when he had his first seizure episode in the summer of 2018. Doctors couldn’t figure out why Noah was having seizures 10 times a day until an amazing doctor at Children’s Healthcare of Atlanta figured out what was wrong with him. In the spring of 2019, Noah was diagnosed with Rasmussen Encephalitis. In late fall of 2019, he had his first brain surgery (Right Hemispherectomy) and his last seizure.

“Noah has always had an open mind with the outcome of his surgery.”

Today, Noah is now physically disabled on the left side of his body and needs help with day-to-day needs. Noah has always had an open mind with the outcome of his surgery. He remains strong and motivated to regain some of his independence while playing sports with Gwinnett Heat in Gwinnett County. He has physical/occupational therapy 2 times a week, Botox every 4-6 months, and is doing amazing with his long recovery. Noah is super excited to have a space he can call his own where he can move around freely and independently.

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Photography by Niki Murphy Photography

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Cade

Written by Joe Lane on . Posted in Meet the Kids.

  • 20 Years Old

  • Spinal Injury C4 Incomplete

Cade graduated highschool in May of 2020. In January of 2021, he was a passenger during a motor vehicle accident and was ejected from the vehicle. Miraculously, he survived. He spent 5 days in a local ICU and was transferred to Shepherds Spinal Center in Atlanta where he spent one week in ICU followed by 9 weeks of inpatient rehab for a spinal cord injury. He was given the diagnosis of C4 incomplete (when damage is dealt about mid-way down the cervical spinal cord), spent 6 weeks on a vent, and is now in a power wheelchair to get around day to day.

“Miraculously, he survived.”

Cade is making progress towards being functional, but right now still requires around the clock care for someone to bathe him, feed him, etc.. even scratch his “itches”! His parents were able to remodel their bathroom so that he can shower there, but his current room is tough for him to get around in and he can’t get in his bathroom. He plans on going to college online at Georgia Highlands for the fall of 2022. While there, he will be studying Psychology and Computer Animation, perfectly in line with his interests of Anime, Star Wars and cars. The world is blessed to still have Cade in it and we are so excited to help make modifications that will allow him to be more independent!

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Photography by Carrie Birchfield Photography

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Mariah

Written by Joe Lane on . Posted in Meet the Kids.

  • 17 Years Old

  • Brain Tumor

In 2013 when Mariah was nine years old, she had a headache that would not go away.  After several visits to various doctors, Mariah went to the emergency room at Children’s Healthcare of Atlanta.  The emergency room doctor initially thought Mariah had a viral infection but ran a CT scan for confirmation.  The CT scan showed a mass in Mariah’s brain which required a follow-up with a neurosurgeon.  Mariah underwent brain surgery and had the tumor removed and the prognosis was positive, Mariah was expected to recover and unlikely to have any more issues. 

Unfortunately, less than one year later Mariah had a regrowth of the tumor which required another surgery for removal.  After the second surgery, the doctors learned that the tumor was extremely aggressive. The type of tumor is called ATRT and the chances of survival are about 50/50. The doctors explained that Mariah would be extremely sick and spend the majority of the next year in the hospital. Mariah was sick at the beginning of treatment but later in the year she was doing so well that the doctors were baffled at how well she tolerated her therapies and medications. Towards the end of Mariah‘s treatment, she had difficulty walking and increased weakness in her legs.  An MRI revealed that she had extreme swelling building in her brain and it was affecting all of her motor movements. Mariah’s condition continued to worsen, she eventually lost all of her ability to move and was very close to not being able to breathe on her own. Around 2016 Mariah was using a machine to rattle her lungs so that she would not get pneumonia.  She also needed help with all of her needs including going to the bathroom, getting dressed, and turning over in the night. Mariah was almost like a zombie.

“Life has recently become more challenging for our family as Mariah is growing more everyday.”

Since 2016, Mariah’s family has been on a path to help Mariah get better. The treatments that she received for her brain swelling left her with bone integrity issues as well as post-menopausal.  She also needed double hip replacements and hormone replacement. She has had one hip replacement.  Mariah has lived with a lot of pain and sadness as to why this has happened to her. However, God has truly used Mariah to grow her parent’s faith and to touch many lives around her in the community. Mariah continues to show signs of improvement to this day. She has not regained the ability to walk or use of her hands but she is much more alert and spunkier! Currently, Mariah attends therapies twice a week and is active in the church.  She is also involved in a special-needs organization called, Extra Special People. These outlets have provided an abundance of joy for Mariah.  Mariah and her parents are so thankful for their family and community.  They are eager to see what the future holds for Mariah and do not think God is finished healing Mariah. 

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Photography by Jennifer Boxley Photography

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John & Joseph

Written by Joe Lane on . Posted in Meet the Kids.

  • 10 & 9 Years Old

  • MECP2 Duplication Syndrome

John and Joseph are brothers born 16 months apart with MECP2 Duplication Syndrome or M2DS. This rare genetic condition causes many issues such as severe intellectual disabilities, impaired motor function, epilepsy, spasticity, speech, as well as gastrointestinal and respiratory issues.

When John was in his toddler and pre-school years, he worked hard to make developmental strides that most people take for granted.  Crawling and walking were milestones that, with therapy and determination, John achieved by the age of 4.  After enjoying his success for only a few short years, John began to experience seizures at the age of 6.  The onset of epilepsy caused John to lose skills that he had once gained such as walking, eating, and even turning pages in his books.  John now gets all of his nutrition through a G-Tube and uses a wheelchair for mobility.  John has also required frequent and lengthy hospital stays at Scottish Rite for respiratory infections and seizures. 

Despite the tremendous setbacks that John has experienced, he is an absolute joy to encounter! He embodies the phrase, “Sunshine on a Ranney Day” because even when things seem like they couldn’t get much worse to those who love him, John’s will, determination, strength and love shine through the darkness to declare that brighter days are ahead!

John and Joseph are overcomers who know that life is not a race where the finish line is at the end but rather, it is a celebration of what one has achieved at the end of each day!

Joseph’s primary struggles with M2DS are developmental.  Joseph began walking just a few weeks shy of his 2nd birthday and has been on the go ever since!  Fine motor skills, such as eating and writing with utensils, have been challenging for Joseph.  He communicates non-verbally and is learning to use a picture exchange binder with the hopes of getting a communication device in the near future.  

Both John and Joseph bring so much joy to their family, friends and everyone who has the pleasure of meeting them.  Their older sister, A.J., is their favorite person in the world and their favorite activities include taking walks to the lake and riding in the golf cart.  John and Joseph are overcomers who know that life is not a race where the finish line is at the end but rather, it is a celebration of what one has achieved at the end of each day!

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Photography by Nicole Wood Photography

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Anthony Jr. & Lyric

Written by Joe Lane on . Posted in Meet the Kids.

  • 14 & 6 Years Old

  • Quad Cerebal Palsy, Epilepsy, Autism

Anthony Jr. was born on December 15, 2005. He has cerebral palsy and epilepsy caused by brain-damaged experienced during a complicated and difficult birth.  Anthony is non-verbal and wheelchair-dependent.  He is a vibrant child and loves his family.  Anthony enjoys music which is no surprise since he comes from a musical family.  

Despite all of Anthony Jr.’s challenges he can communicate and enjoys a good laugh.  He shows a love for life and what it means to fully live in the moment.  Anthony Jr.’s love for life also keeps his entire family going. 

Lyric, younger brother to Anthony Jr., was born on December 11, 2015. Lyric was diagnosed with autism in 2017.  He is an extremely intelligent little boy and continues to amaze everyone with what he knows.  He enjoys music just like his older brother, Anthony Jr.  Lyric also enjoys being outdoors and interacting with people.  

Lyric faces challenges every day and he works really hard to do his best. He is always the energy in the room that encourages others to be ok in moments of darkness. He is such a loving little boy just like Anthony Jr.  Lyric tries his hardest to help his big brother.  He watches others take care of Anthony Jr. and attempts to mimic their actions. 

Lyric is truly what helps Anthony Jr. continue to smile! Lyric and Anthony Jr. represent brotherly love like no others!

“He is always the energy in the room that encourages others to be ok in moments of darkness.”

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Photography by Vicki Alsup Photography

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