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Harrison

  • 17 Years Old
  • PURA Syndrome

This blonde haired, blue-eyed cutie is Harrison. He is 17 years old and captures the heart of anyone he comes in contact with. He loves music, motorcycles, rollercoasters, being outdoors, dancing, swimming and using his iPad and enjoying the company of other people. He has played adapted baseball since he was five years old and participates in other adapted sports through a buddy program at his high school. Born prematurely, Harrison experienced significant health concerns, seizures and symptoms requiring hospitalizations and surgeries. Despite tons of testing, nothing brought answers until he was 14-years old. After experiencing traumatic violent seizures that lead to fractured bones and teeth, his parents sought out for answers through a DNA Sequencing test and he was diagnosed with PURA Syndrome. At the time, Harrison was only the twenty first case recorded throughout the world, although now there are about 301 known cases.

After experiencing traumatic violent seizures that lead to fractured bones and teeth, his parents sought out for answers through a DNA Sequencing test and he was diagnosed with PURA Syndrome.

This is a neurodevelopmental diagnosis that presents itself with children being nonverbal, non-ambulatory as they get older, seizures, developmentally delayed both mentally and physically, diaper dependent and yet they all have extremely sweet and happy demeanors Harrison has to sleep in a special “Sleep Safe” bed, requires a wheelchair for mobility, uses simple signs and gestures to communicate, attends special classes at school for children with severe disabilities, and requires assistance in all aspects of his daily care. Harrison also serves as a “Miracle Kid” with For the Kids at both Kennesaw State University and Georgia Tech in an effort to give back to the community at Children’s Healthcare of Atlanta that has helped him to become the admirable person he is today. Sunshine on a Ranney Day has chosen Harrison as the beneficiary of an accessible bathroom renovation to help make his days brighter and his smile wider. He hopes that you will support this endeavor and join us at the big reveal.
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Photography by Birchfield Photography

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Lainey

  • 13 Years Old

  • Spina Bifida

We are proud to introduce you to Lainey. This beautiful princess is thirteen years old and is a devoted daddy’s girl. Her biggest fans are her two big brothers and her dog Buddy. She recently became aware that Sunshine on A Ranney Day will be renovating her home and she is absolutely thrilled! Sunshine on A Ranney Day is planning a spectacular dream make over for her and is looking forward to breaking ground on this project.

Lainey is the baby of the family and was born with Spina Bifida. She resided in the NICU at Children’s Hospital of Atlanta at Scottish Rite for 27 days. While there, she endured multiple medical procedures and three distinct surgeries. Since that time, the number of surgeries she has undergone has risen to twenty-seven. Despite the fact that surgery is a major event and most people never endure more than one, Lainey withstands them like a champ. She is exceptionally brave and extraordinarily cheerful. In addition to a vast number of surgeries, she also has a VP shunt, a spinal shunt, a neurogenic bladder, scoliosis, and is wheelchair dependent. She relies on others to meet all of her needs throughout the day.

Lainey is the baby of the family and was born with Spina Bifida. She resided in the NICU at Children’s Hospital of Atlanta at Scottish Rite for 27 days.

Currently, Lainey has growing rods, also known as Harrington Rods, that were surgically implanted along her spinal column to correct scoliosis and they are lengthened every six months. This procedure is excruciatingly painful, but she faces these procedures with positivity and poise.

Lainey is a 7th grader at McClure Middle School and wholeheartedly loves her teachers, friends and the school community. She has an amazing memory and is obsessed with learning people’s names and the names of their dogs and children. She participates in aquatic therapy at Kool Kidz as well as occupational therapy and at McKenna Farms. For fun, she likes playing on her iPad, swimming and the beach. Lainey loves all things Disney and princesses. She is using her experience to inspire others and make a difference in the world by serving as a miracle child for UGA Miracle and loves raising funds for Children’s Hospital of Atlanta.

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Photography by Little Stitch Photography

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Christian V

  • 16 Years Old

  • Cerebral Palsy

This handsome fellow is the next recipient of a dream makeover from Sunshine on a Ranney Day. Christian is a gregarious 16-year old boy with Cerebral Palsy who dreams of being a DJ when he grows up. Just hours after having his wisdom teeth removed, Christian was on the air at the Ryan Seacrest Studio at CHOA Egleston, interviewing children awaiting surgery. Smart and witty, he charmed his guests with unexpected bits of well-placed humor. Christian is social, craves engagement and loves lifting others up. His middle school football coach saw a spark in him and invited him to join the team as an inspirational sideline coach. Christian’s positive attitude was contagious and earned him the coveted Heart of the Lion award given for courage in the face of stiff odds. By Christian’s eighth-grade year, the coach renamed the award after its inspirational recipient. Christian will return each fall to hand out the honor to a deserving athlete and make a speech during the football banquet. 

Christian is a gregarious 16-year old boy with Cerebral Palsy who dreams of being a DJ when he grows up.

Christian was born prematurely by emergency c-section and spent 32-days in the NICU. Eight months later, after failing to meet developmental milestones, he was diagnosed with Cerebral Palsy. At three years old, he received his first wheelchair, entered pre-school and learned to speak. This is when his personality began to emerge. He has continued to thrive and grow despite his disability, which he says he doesn’t notice all that much. Now that he is 5 foot 2 and one hundred pounds, with a 250-pound wheelchair, caring for him in a traditional sized bathroom and narrow bedroom doors has become a difficult challenge. With a bathroom remodel and ramp installation, Sunshine on a Ranney Day hopes to keep his dream alive and help him achieve his goals while helping his family continue to care for him in his home. We hope that you will join us in making this project become a reality.

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Photography by Kristy Weaver Photography

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Elizabeth

  • 17 Years Old
  • Tranverse Myelitis

This gorgeous young lady with an inspirational smile is Elizabeth. Until the evening of Friday, February 17, 2017, Elizabeth was a healthy, social, active teenager who played Lacrosse. Her world was turned upside down that evening and has not been the same since. Elizabeth noticed a weird feeling and felt pain in her legs. Within a few hours she was paralyzed from the waist down and has not taken a step beyond that moment. Her condition was determined to be Transverse Myelitis, which is a rare neurological disorder. On top of adjusting to being in a wheelchair full time, Elizabeth suffers chronic pain, fatigue and health complications.

Her only wish is to spend more time with her friends and Sunshine on a Ranney Day is going to grant it!

Although she faces her battles head on, the social impact of this life change has hit her the hardest. She can no longer easily enter the homes of her friends due to lack of wheelchair accessibility. Her only wish is to spend more time with her friends and Sunshine on a Ranney Day is going to grant it! Elizabeth will be getting an accessible bathroom and a “hang out” space in her teen suite so friends can come spend time with her at home. With this new set-up, her service dog Stevie Ray will not be left behind. He is very excited about having his human friends over! We are ecstatic about breaking ground on this unique and sensational project to help Elizabeth adjust to her new lifestyle. Watch out world, she is going to shine brighter than the sun!

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Photography by Nicole Photography

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Fenton

  • 5 Years Old
  • Modern Day Polio
Sweet Fenton has captured our hearts and will be acquiring a dream-worthy state of the art therapy room from Sunshine on a Ranney Day! Fenton was a perfectly healthy four year old boy until June 22nd last year when he woke up complaining that his neck hurt. He was diagnosed with Acute Flaccid Myelitis (Modern Day Polio). His entire body has become paralyzed; he is on a ventilator and a tracheotomy. This endearing little boy, who is the baby of the family, is fun-loving and laces humor into everything with comments and one-liners. Fenton is very verbal and very inquisitive. He has a big personality; and, has always asserted that he will be nothing less than mighty. He loves life with all of his being and relishes in learning. He is fascinated with different languages and loves learning words in many languages. He follows Atlanta sports teams and keeps up with the players and recruiting for the Atlanta United, Atlanta Falcons and Atlanta Braves. Fenton is currently one of only four cases of Modern Day Polio in Georgia and one of roughly 300 nationwide.

Fenton is currently one of only four cases of Modern Day Polio in Georgia and one of roughly 300 nationwide.

Fenton’s spine was infused with inflammation that quickly destroyed tissue including the nerve conduits leading to his extremities. He is scheduled to receive an innovative new surgical procedure called nerve transfers and is hopeful that the results will be positive; and, he will be able to breathe without a ventilator. Fenton’s daily routine is built upon an intensive therapy schedule. With therapeutic electrical stimulation and consistent movement, children like Fenton show strengthening and meaningful muscle improvements over time. Intensive therapy treatments are important for Fenton to achieve maximum potential. Fenton is a resilient trooper and a complete ray of light. He provides hope in the face of fear and replaces sadness with smiles. Sunshine on a Ranney Day hopes to bring endless smiles to Fenton and his family though this exciting venture! We’d love to see you at the big reveal!
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Photography by Niki Murphy Photography

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Jacob

  • 18 Years Old
  • Down Syndrome, Leukemia

We’d like to introduce you to Jacob. This handsome and ambitious young man will be getting a spectacular bedroom makeover from Sunshine on a Ranney Day. Although Jacob has endured many challenges in his short nineteen years, he hasn’t let them thwart his energetic and loving spirit! Despite having Down Syndrome, undergoing over 100 surgical procedures and surviving Acute Lymphoblastic Leukemia, he has accomplished a plethora of high honors in advocacy for children’s healthcare, educational reform and in several sports through the Special Olympics. He has won three gold medals; one for the 50 M Dash, one in Softball and one for the 50 M walk! With his mom by his side, Jacob has been involved in media awareness events with CBS, CNN, Fox and The Associate Press. He is also involved in many organizations including Rally Foundation for Childhood Cancer Research, the National Down Syndrome Congress, the Down Syndrome Association of Atlanta, North Metro Miracle League, Georgia Autism Society, Autism Speaks, Sibley Heart Center, Make-a-Wish Foundation and Camp Sunshine. The list goes on as he has dedicated his life to reaching his ultimate dream: that society will see him for his abilities and not his disabilities. This is his dream, not only for himself, but for all children. He does not let disability, illness, chemotherapy or anything else get in the way. Although he completed 3.5 years of chemotherapy, he has 4.5 more years of monitoring before he can be considered cured from cancer.

Despite having Down Syndrome, undergoing over 100 surgical procedures and surviving Acute Lymphoblastic Leukemia, he has accomplished a plethora of high honors in advocacy for children’s healthcare, educational reform and in several sports through the Special Olympics.

It will not stop him from achieving his goals and working hard to make a difference. Jacob is adventurous and spirited, enjoying the wonders of teenage living including listening to music, going on roller coasters, attending sporting events and attending Prom at Night to Shine. He loves reading, playing the bells and xylophone, hanging out with his friends, dancing in his tuxedo and playing baseball. We love his smile and warm heart. Nothing will give us greater pleasure than spreading a little sunshine through a dream makeover especially for him!
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Photography by Nicole Photography

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Preston

  • 17 Years Old
  • Tranverse Myelitis

Preston is a 14 year old boy who loves Spider Man, learning about the customs of foreign countries and building blanket forts. He is non-verbal, hearing impaired, medically fragile and suffers from Cerebral Palsy. Preston lives with his 4 siblings in an active household. He shares a room with his 6 year old brother, Asher. Preston cannot walk for long distances and uses a wheelchair when venturing out of the house. Preston must be supervised 100% of the time and is home schooled during the winter months. Before he was born, Preston was diagnosed with Polymicroygria, a genetic disorder, causing seizures, delayed speech and muscle weakness. Preston is a private child who loves to spend time in his room. Sunshine on a Ranney Day is excited to partner with sponsor, Kids R Kids, to build Preston a Dream Bedroom which will give him an escape from his bustling household and his 3 year old twin sisters!

Before he was born, Preston was diagnosed with Polymicroygria, a genetic disorder, causing seizures, delayed speech and muscle weakness.

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Photography by Pear Tree Photography

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Landon

  • 9 Years Old
  • Heart Transplant

This handsome 9 year old is Landon! He had a successful heart transplant at 6 months old. Then, a year later, suffered from bacterial meningitis which left him with brain damage. Landon is non-mobile, non-verbal and communicates through laughs and smiles. Landon loves to fly in airplanes; loves music (Stevie Wonder); loves to be outside with the sunshine hitting his face and loves “shower-time.” Sunshine On A Ranney Day is excited to partner with Make A Wish Foundation to provide Landon with an accessible bathroom to make “shower-time” easier and even more fun!

He had a successful heart transplant at 6 months old. Then, a year later, suffered from bacterial meningitis which left him with brain damage.

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Photography by Niki Murphy Photography

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Sophia

  • 16 Years Old

  • Cystic Fibrosis

We are beaming with excitement to announce that Sunshine on a Ranney Day will be giving Sophia a dazzling dream bedroom makeover! This smart, beautiful and wildly spunky sixteen year old is proof that mighty power can come from within a tiny package. From the beginning, she was a ball of spit and fire. Her unwavering perseverance has served her well. Diagnosed with Cystic Fibrosis at the age of four, she has faced her trials with the strength and courage of a superhero. She has endured daily airway treatments, multiple lengthy hospitalizations and fought off the most dangerous bacterial infection, Burkholderia Cepacia. Despite these aggressive ailments, she exudes confidence, fierce passion and a desire to change the world for the better. Sophia loves music and singing. She has been playing the drums soulfully for over four years and learned to play the ukulele during her last hospital stay. She is a gifted writer, putting this talent to good use by writing songs that her music teacher is helping her produce. She is also writing a compelling novel that is centered around a character who lives with Cystic Fibrosis. This is just one of many opportunities she takes to educate others about CF. Sophia has been actively engaged in her treatment with medical professionals since she was old enough to ask and answer questions. Admirably, she has also chosen to participate in research studies to help further scientific advancements in CF care. We can’t wait to surprise her with the makeover of her dreams! We hope that you will support our efforts and join us at the unveiling of this completed project.

Diagnosed with Cystic Fibrosis at the age of four, she has faced her trials with the strength and courage of a superhero.

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Photography by Niki Murphy Photography

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Matthew

  • 7 Years Old

  • Epilepsy, Autism

Meet Matthew! Matthew is a fun-spirited 7-year old who loves watching Daniel Tiger’s Neighborhood morning, noon and night! He can sing most of the songs and wants his mom and dad to sing with him. Matthew also loves being outside every opportunity he gets. He is a very sweet and caring young boy who cherishes life. At the age of 1, Matthew was developing on a typical schedule for a boy his age and hitting all of the expected developmental milestones. He was crawling, walking and saying his first words. It was a joy to watch him grow. One day in March of 2013, his parents received a phone call from Matthews daycare, stating that he was having a seizure and they were taking him to the hospital. There, Matthew was diagnosed with an ear infection that caused a febrile seizure. This was just the beginning of months of recurring ear infections and other illnesses that came with several more seizures. After seeing a neurologist, Matthew was diagnosed with a febrile seizure disorder. His parents were advised to put Matthew on anti-seizure medication to control the seizures. This, along with surgery to put tubes in his ears, worked wonders for Matthew. In the spring of 2018, Matthew’s family sought the assistance of a different neurologist and had another EEG that revealed he was experiencing a variety of types of seizures and he was diagnosed with epilepsy. Shortly after going through all of this, his parents started to notice changes in Matthew.

He stopped responding to his name, stopped making eye contact, started flapping his hands, and started babbling rather than using the words he had previously spoken on a regular basis.

He stopped responding to his name, stopped making eye contact, started flapping his hands, and started babbling rather than using the words he had previously spoken on a regular basis. Words like “mama” and “dadda” simply disappeared from his vocabulary. Matthew underwent extensive testing from a psychologist who spend a great deal of time assessing his skills and behaviors. At the conclusion of the assessment, they were told that Matthew had Autism. This diagnosis was unexpected and heartbreaking. After speaking with his pediatrician, they decided that the first step in getting Matthew the help he needed was to get him enrolled into the Babies Can’t Wait early intervention program. He was only in the program for roughly 6 months until he turned 3. He then continued services with the county public school system along with private speech, occupational and physical therapy. Now, after four years of weekly private speech, occupational, physical and ABA therapy Matthew is demonstrating significant gains. Matthew’s communication has increased tremendously. The ABA (Applied Behavioral Analysis) therapy helps teach him self-help skills, such as potty training and play skills. Matthew is starting to play more with friends, make eye contact and is talking more. Every single day is a new day and every milestone is big. The small victories add together to make big changes leading to a bright future for Matthew. Sunshine on a Ranney Day is excited to be planning a brilliant dream therapy room to help Matthew enjoy a place where he continue to thrive while in the comfort of his own home! Please join us in making this project come to fruition!

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Photography by Studio79

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