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Mariah

  • 17 Years Old

  • Brain Tumor

In 2013 when Mariah was nine years old, she had a headache that would not go away.  After several visits to various doctors, Mariah went to the emergency room at Children’s Healthcare of Atlanta.  The emergency room doctor initially thought Mariah had a viral infection but ran a CT scan for confirmation.  The CT scan showed a mass in Mariah’s brain which required a follow-up with a neurosurgeon.  Mariah underwent brain surgery and had the tumor removed and the prognosis was positive, Mariah was expected to recover and unlikely to have any more issues. 

Unfortunately, less than one year later Mariah had a regrowth of the tumor which required another surgery for removal.  After the second surgery, the doctors learned that the tumor was extremely aggressive. The type of tumor is called ATRT and the chances of survival are about 50/50. The doctors explained that Mariah would be extremely sick and spend the majority of the next year in the hospital. Mariah was sick at the beginning of treatment but later in the year she was doing so well that the doctors were baffled at how well she tolerated her therapies and medications. Towards the end of Mariah‘s treatment, she had difficulty walking and increased weakness in her legs.  An MRI revealed that she had extreme swelling building in her brain and it was affecting all of her motor movements. Mariah’s condition continued to worsen, she eventually lost all of her ability to move and was very close to not being able to breathe on her own. Around 2016 Mariah was using a machine to rattle her lungs so that she would not get pneumonia.  She also needed help with all of her needs including going to the bathroom, getting dressed, and turning over in the night. Mariah was almost like a zombie.

“Life has recently become more challenging for our family as Mariah is growing more everyday.”

Since 2016, Mariah’s family has been on a path to help Mariah get better. The treatments that she received for her brain swelling left her with bone integrity issues as well as post-menopausal.  She also needed double hip replacements and hormone replacement. She has had one hip replacement.  Mariah has lived with a lot of pain and sadness as to why this has happened to her. However, God has truly used Mariah to grow her parent’s faith and to touch many lives around her in the community. Mariah continues to show signs of improvement to this day. She has not regained the ability to walk or use of her hands but she is much more alert and spunkier! Currently, Mariah attends therapies twice a week and is active in the church.  She is also involved in a special-needs organization called, Extra Special People. These outlets have provided an abundance of joy for Mariah.  Mariah and her parents are so thankful for their family and community.  They are eager to see what the future holds for Mariah and do not think God is finished healing Mariah. 

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Photography by Jennifer Boxley Photography

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John & Joseph

  • 10 & 9 Years Old

  • MECP2 Duplication Syndrome

John and Joseph are brothers born 16 months apart with MECP2 Duplication Syndrome or M2DS. This rare genetic condition causes many issues such as severe intellectual disabilities, impaired motor function, epilepsy, spasticity, speech, as well as gastrointestinal and respiratory issues.

When John was in his toddler and pre-school years, he worked hard to make developmental strides that most people take for granted.  Crawling and walking were milestones that, with therapy and determination, John achieved by the age of 4.  After enjoying his success for only a few short years, John began to experience seizures at the age of 6.  The onset of epilepsy caused John to lose skills that he had once gained such as walking, eating, and even turning pages in his books.  John now gets all of his nutrition through a G-Tube and uses a wheelchair for mobility.  John has also required frequent and lengthy hospital stays at Scottish Rite for respiratory infections and seizures. 

Despite the tremendous setbacks that John has experienced, he is an absolute joy to encounter! He embodies the phrase, “Sunshine on a Ranney Day” because even when things seem like they couldn’t get much worse to those who love him, John’s will, determination, strength and love shine through the darkness to declare that brighter days are ahead!

John and Joseph are overcomers who know that life is not a race where the finish line is at the end but rather, it is a celebration of what one has achieved at the end of each day!

Joseph’s primary struggles with M2DS are developmental.  Joseph began walking just a few weeks shy of his 2nd birthday and has been on the go ever since!  Fine motor skills, such as eating and writing with utensils, have been challenging for Joseph.  He communicates non-verbally and is learning to use a picture exchange binder with the hopes of getting a communication device in the near future.  

Both John and Joseph bring so much joy to their family, friends and everyone who has the pleasure of meeting them.  Their older sister, A.J., is their favorite person in the world and their favorite activities include taking walks to the lake and riding in the golf cart.  John and Joseph are overcomers who know that life is not a race where the finish line is at the end but rather, it is a celebration of what one has achieved at the end of each day!

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Photography by Nicole Wood Photography

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Griffin

  • 11 Years Old

  • Autism

Griffin was born at full term without any health problems. Early on, he met all of his developmental milestones and even did some things early.  Within the first week of birth, Griffin was holding his head up and looking around as well as rolling over.

Griffin’s family started noticing around 18-24 months that things had started to change for Griffin developmentally. Griffin’s eye contact and vocabulary had decreased and you could see a disconnect when he was around other children his age.  Griffin was so young which made it challenging to diagnose.  It was puzzling to see that Griffin’s vocabulary was advanced but his communication was far behind.  Shortly after Griffin turned three his family started the process of testing for Autism which was the eventual diagnosis.  Griffin’s young age made it difficult to really know what this meant for Griffin long-term.  Griffin receives speech and occupational therapy and most importantly interaction with other children not on the spectrum which has benefited him more than any other therapies.

“Griffin has always been full of energy and was running around the house by 10 months old.”

Present-day, Griffin is thriving! He always makes people laugh and has such a fun personality. Griffin has developed a love for art and one of his favorite hobbies is drawing.  Griffin’s life has inspired some amazing things to happen. Griffin’s dad, Michael, works in law enforcement and created a program where officers visit special needs children at school and become their friend first. They teach the kids that officers are there to help and how to properly act with law enforcement and to not be afraid.  Griffin and his mom have a social media platform where they share about products, events, and places that are Autism friendly.  Griffin’s family continues to raise awareness and shine a positive light on Autism and they are grateful for everyone who has been a part of the journey!

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Photography by Carrie Birchfield Photography

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Celia

  • 13 Years Old

  • Leigh’s Disease

Celia and her twin sister were adopted from China at the age of 26 months. Celia and her twin are currently thirteen years old and the youngest of six kids.  During adoption, it was thought that Celia had cerebral palsy (CP) but after extensive testing, Celia likely has a mitochondrial disorder, which is neuro-degenerative, called Leigh’s disease or a Leigh-like syndrome. 

“She even has a superpower; Celia can use her toes to type and play games on her iPad!”

Celia cannot walk unassisted, use her hands purposefully, or eat by mouth.  Celia has endured many surgeries and hospitalizations and unfortunately had a setback in 2020 during a procedure that was supposed to help improve her dystonia (painful involuntary muscle contractures).  Celia lost the ability to speak, process information, sleep, and most devastatingly her sweet spunky personality.  In 2021 the procedure was reversed and hopefully with the love and support of Celia’s family, their faith in God, and extensive therapies she can regain what was lost.

Celia’s family wishes everyone had a Celia in their lives.  She’s joyful, happy, has an amazing smile, and loves her family.  She even has a superpower; Celia can use her toes to type and play games on her iPad!  Celia has good days and bad days, she struggles with strength, stamina, communication, and mental cognition but through it all, she is the brightest of lights and a gift to all that know her.  Celia truly is God’s precious blessing!

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Photography by Nicole W Photography

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Brylee

  • 9 Years Old

  • Nemaline Rod Myopathy

Brylee was born with a rare disease, Nemaline Rod Myopathy.  She spent time in the NICU at Children’s Healthcare of Atlanta.  Brylee had a tracheotomy procedure in order to keep her alive.  It was also explained to Brylee’s family that kids with severe Nemaline, like Brylee, typically live 18 months and can only use their eyelids since the disease affects the muscles.  Brylee has defied the odds, she can move her arms with help, kick her legs, and talks nonstop.

“Brylee loves animals and wants to be a veterinarian when she grows up.”

Brylee is now 10 years old and has had multiple surgeries and visits to the hospital. Brylee is a fighter!  Brylee can drive her wheelchair around the house.  She loves playing with her cousins and friends along with trips to the playground.  Brylee loves animals and wants to be a veterinarian when she grows up.  Brylee and her family are so excited about her accessible bathroom!

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Photography by Kristi Weaver Photography

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Braxton

  • 12 Years Old

  • Spina Bifida Lipomyelomeningocele

Braxton is 13 years old and the oldest of 3, he’s a big brother to Wyatt and Landry.  On most days, you can find him playing basketball in the driveway, gaming on the Xbox, or begging his mom to take him to the Lego store.  Braxton was born with Spina Bifida/Lipomyelomeningocele and has endured over 14 surgeries to date at Children’s Healthcare of Atlanta.  Braxton attends Veritas Classical Schools which is a home school hybrid.  This allows Braxton’s schedule to be more flexible when medical appointments, therapies, and surgeries arise.  Although ambulatory, Braxton’s mobility has lessened over the years and he’s relying more on his wheelchair and other assistive devices to accomplish daily activities. 

“He is very creative and has an 8-foot table housing a giant city that he has designed and continuously recreates all himself.”

Braxton sometimes struggles physically since he is unable to run and walk like most kids his age but that has not slowed him down!  Braxton is the athlete of his family, playing both wheelchair basketball and competing in adaptive track and field for BlazeSports.  He would actually like to participate in ALL adaptive sports, but he would need his own chauffer.  On the basketball court, #5 plays with his whole heart and fierce determination!  Braxton recently made the Prep All-Tournament Team at the NWBA Nationals in 2022.  He hopes to play wheelchair basketball at the collegiate level as well as dreams to make Team USA one day.   On the track, he is a lover of field events and broke the national record for shotput in 2019.  Braxton is also an avid member of Scouts in Troop 1459 and is on track to earn his Eagle Scout Ranking in the future. He recently went on a 4-day adventure to Cumberland Island where he was able to hike over 20 miles with his troop in his Grit Freedom Chair.   Braxton is also a LEGO MANIAC and has thousands and thousands in his room!  He is very creative and has an 8-foot table housing a giant city that he has designed and continuously recreates all himself. He is an amazing artist as well and loves to veg out and play video games with his brother and friends. Braxton is active in his church youth group at North Point Community Church and is surrounded by amazing leaders and friends.  

Braxton’s family calls him Braxton the Brave as he inspires his family everyday through the path that God has laid out before him.  Braxton and his family are so excited about his bedroom and bathroom accessible makeover.  Gaining that extra independence will be a game changer as well as make each day brighter!

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Photography by Niki Murphy Photography

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Joseph

  • 5 Years Old

  • Spina Bifida Myelomeningocele

Joseph has always been a little Superman. Even after receiving the prenatal diagnosis of spina bifida, we couldn’t have been prepared for the challenges we were about to face. Joseph was born prematurely with a large, open hole in his spine and bravely began his life with 77 days in the NICU. He underwent ten surgeries, countless medical scans and tests, revolving doctor appointments, and multiple hospital stays, which are the routine for so many special needs children. This can be scary for a young child, but Joseph is brave beyond his years.  

Like many children with spina bifida, Joseph developed hydrocephalus, a condition that allows fluid to accumulate in the brain. This can cause brain damage from the buildup of pressure. Joseph had a shunt surgically placed in his skull as a newborn to protect his brain. The tiny tubing and valve keep the fluid that cushions the brain freely flowing. Despite the effects of hydrocephalus and an underdeveloped cerebellum, Joseph grew into a smart, funny little five-year-old boy.

For the first year and a half of his life, Joseph required 24-hour oxygen and a feeding tube for all his nutrition. By 18 months, he received his first tiny wheelchair as he is paralyzed from the waist down. He was non-verbal and used a voice-producing device until the was three and half years old. Then one day he recited the entire alphabet and hasn’t stopped talking since! Today, he only requires supplemental oxygen at night and eats by mouth on his own. He loves showing off his wheelchair “tricks,” meeting new people and learning their names. Although he has some developmental delays you will notice when you meet him, what outshines those is how earnestly he wants to be your friend. He has a strong memory for stories and loves to repeat (and repeat!)  the adventures of historical heroes he has learned about.  

“He loves showing off his wheelchair “tricks,” meeting new people, and learning their names.”

Joseph’s determination through each health challenge is growing into a resolution to be independent. His family and amazing team of therapists is doing everything they can to help him accomplish this. Unfortunately, even something as simple as a narrow doorway can thwart his efforts. That obstacle, along with a flight of stairs, means he must be carried to his bedroom. And this is just the beginning of how Joseph becomes like an infant all over again. He must be lifted to a changing station for diaper changes and all his grooming and bathing needs are fulfilled by mom and dad in a bathroom designed for those who can walk independently. 

Generous friends of the Smith family sent Joseph’s story to Sunshine on a Ranney Day and soon Joseph will have the independence and dignity he desires. The makeover of a downstairs bedroom and the transformation of a bathroom that is not accessible will provide him with the physical means to begin an independence that will stay with him his entire life. We are incredibly excited and grateful to everyone involved with this phenomenal gift.  

Just like Superman, underneath his sweet smile and friendly conversation, Joseph has strength and bravery that has kept this little guy soaring through everything life presents. Thank you to Sunshine on a Ranney Day for breaking down walls to help Joseph not just roll, but fly!

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Photography by Vicki Alsup Photography

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Reese

  • 4 Years Old

  • Acute Lymphoblastic Leukemia

I’ll never forget the pain of December 2, 2020. I was making a sales call for work and had several missed calls from my husband, Marcus. He rarely calls me repeatedly in the middle of a workday. I learned our two year old son, Reese, had a fever and small purple dots on his legs (petechia). We weren’t the kind of parents who took our kids to the doctor for every little thing, but this was different. Marcus took him to our pediatrician. They did bloodwork and found Reese’s white blood cell count was through the roof. My husband could tell by the look on the doctor’s face something was seriously wrong.

The drive from our house to Children’s Healthcare (Scottish Rite) in Atlanta for further testing, was filled with mental torture. Our minds raced, our hearts beat out of our chests, and panic sank in. We sat on a bed in a small, dimly lit room in the ER waiting to hear what was wrong with our precious boy. Marcus had stepped out to meet my mom in the parking lot since they said it could take some time. I called my dad. But just a few short minutes later, the doctor rushed in. I looked up, hoping with every ounce of my being she would say Reese was okay.

“I’m so sorry to tell you this. But we examined Reese’s blood under a microscope. And based on everything we’re seeing, your child has Leukemia.” I fell. My arms went limp, dropping my phone on the hospital bed. “No! It can’t be. Can you run more tests? Are you sure? Oh God, no!” 

“We weren’t the kind of parents who took our kids to the doctor for every little thing, but this was different.”

I sat alone feeling shattered into a million pieces, completely broken. Marcus walked in and I shared how our entire world had just been torn apart. We curled up next to Reese, holding him, caressing his cheeks, soaking the pillows with tears. I’ll never forget it. 

One year later, and our sweet boy is in remission! Praise God! He’s continuing to receive chemotherapy and takes a revolutionary medication to turn off the Philadelphia chromosome; a rare chromosome he was diagnosed with in addition to Leukemia that essentially tells his body to keep making cancer.

We thought it would be super special for Reese and his older brother, Jett, to have a playroom where they can go to take their minds off the heaviness of this season we are in. Jett has had a very hard time as he’s often felt left out and forgotten. Sometimes he even says how he wishes he had cancer too. Reese adores Jett and this would give them a special area that is all theirs.

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Photography by Niki Murphy Photography

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Reid

  • 7 Years Old

  • Recessive Dystrophic Epidermolysis Bullosa

Reid is a somewhat shy seven-year-old boy who was born with Recessive Dystrophic Epidermolysis Bullosa; an extremely painful and debilitating genetic skin disease. At birth, Reid was missing large pieces of skin on his back, legs, hands and arms. Kids born with RDEB lack a critical protein that binds our layers of skin together like velcro. Without this protein, Collagen VII, Reid’s skin blisters and tears all over his body, mouth, esophagus, and eyes. What he and others with this severe form of the disease go through is beyond anyone’s comprehension. Reid endures extremely painful daily bandage changes. The severe wounds all over his body must be carefully cleaned and his mother must puncture any blisters to prevent them from spreading. Without the Collagen VII protein, blisters develop from the slightest friction (clothes seams, car seats, daily life) and can get larger because the velcro is not there to stop the spreading. 

“We are so pleased that Sunshine on a Ranney Day has offered to transform our bonus room into a dream bedroom for Reid.”

Despite living with this debilitating condition, Reid enjoys building with Lincoln Logs and riding his plasma bike. He also enjoys the company of his two older siblings, Avery and Barret. Although Reid has a feeding tube, he loves food! Even though eating can be painful, he enjoys small bites of cheese pizza and hotdogs when he doesn’t have any blisters in his mouth or throat. He is homeschooled and loves listening to Christian Hip Hop or watching The Spy Ninjas on YouTube.

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Photography by Pear Tree Photography

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Anthony Jr. & Lyric

  • 14 & 6 Years Old

  • Quad Cerebal Palsy, Epilepsy, Autism

Anthony Jr. was born on December 15, 2005. He has cerebral palsy and epilepsy caused by brain-damaged experienced during a complicated and difficult birth.  Anthony is non-verbal and wheelchair-dependent.  He is a vibrant child and loves his family.  Anthony enjoys music which is no surprise since he comes from a musical family.  

Despite all of Anthony Jr.’s challenges he can communicate and enjoys a good laugh.  He shows a love for life and what it means to fully live in the moment.  Anthony Jr.’s love for life also keeps his entire family going. 

“He is always the energy in the room that encourages others to be ok in moments of darkness.”

Lyric, younger brother to Anthony Jr., was born on December 11, 2015. Lyric was diagnosed with autism in 2017.  He is an extremely intelligent little boy and continues to amaze everyone with what he knows.  He enjoys music just like his older brother, Anthony Jr.  Lyric also enjoys being outdoors and interacting with people.  

Lyric faces challenges every day and he works really hard to do his best. He is always the energy in the room that encourages others to be ok in moments of darkness. He is such a loving little boy just like Anthony Jr.  Lyric tries his hardest to help his big brother.  He watches others take care of Anthony Jr. and attempts to mimic their actions. 

Lyric is truly what helps Anthony Jr. continue to smile! Lyric and Anthony Jr. represent brotherly love like no others!

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Photography by Vicki Alsup Photography

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