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Author: Clareece Cunningham

Peyton

  • 7 Years Old

  • Cerebral Palsy, Hydrocephalus, Epilepsy

In 2015, Crystal gave birth to twins Peyton and Taylor at 26 weeks. Both only weighed a little over a pound a piece! Taylor had a brain bleed and Peyton suffered bilateral brain bleeds grade 3 and 4. After both came down with hydrocephalus, the girls got a VP shunt to help drain extra cerebrospinal fluid from the brain. All of this resulted in 3 months in the NICU! For the first year of their lives afterward, all seemed normal until they noticed Peyton was ignoring her right hand. They soon began early interventions and before long Peyton was diagnosed with cerebral palsy, affecting the right side of her body. She worked super hard in therapies and was able to take her first steps at 3 years old! Since then, Peyton began having seizures and now has the diagnosis of focal epilepsy as well.

Despite everything she has gone through, she is the sweetest, happiest girl!

Despite everything she has gone through, she is the sweetest, happiest girl! In June of 2022 she underwent a surgery called selective dorsal rhizotomy at Children’s Healthcare of Atlanta. This surgery was intended to relieve some of her symptoms of cerebral palsy and hopefully help her stay mobile and gain more skills. Peyton spent 30 days in the rehab facility at the hospital, working through intensive physical therapy. Even though this surgery requires a lot out of Peyton for the first year post-op, she has stayed so joyful and determined! Her hard work of relearning how to walk again paid off when she took her first independent steps again a week before Halloween. She attends intensive physical therapy 5 days a week and is making great strides towards a full recovery! She is truly my hero,” – Peyton’s mom, Crystal.

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Photography by Carrie Birchfield

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Hudson

  • 4 Years Old

  • Gaucher Disease Type 2

Hudson is the youngest of 3 children, following his sister Olivia (8) and brother Gavin (10). He was born a happy healthy baby. Around 4 months of age, Hudson’s parents started noticing some differences in him, such as weight loss, difficulty nursing, and choking. After a few significant episodes Hudson was hospitalized around 6 months of age for further investigation. After a 16 day stay in the hospital and lots of testing Hudson was sent home with no answers and told to follow up with genetics. At the young age of 9 months old, on July 2nd, 2018, Hudson’s mom Nichole received the phone call that would forever alter the life their family had once dreamed of. Hudson was diagnosed with a rare, incurable, terminal, genetic disease, Gauchers Disease 2. They were told to put Hudson on hospice, that he would have no quality of life, never walk, talk, or live past the age of 2. Nichole’s response to them….. “but God”.

You’ve never had a hug ‘till you’ve had a Huddy hug!”

Hudson is now an amazing 5 year old who is living his BEST life! His family has and will continue to go to the ends of the earth for Hudson and his siblings. For the past 4 years they have made the drive to D.C. every 3 to 6 months for Hudson’s geneticist who is the only one in the US willing to give him a chance at life! In fact, Hudson is now being followed by geneticists all over the world as he is re-writing the books and making a way for all the children to come. 

Hudson is a very social kid, who thinks his siblings have hung the moon. He loves sports (football, basketball, and baseball), movies (Toy Story is his favorite), and has a smile that lights up his family’s world! He’s also known to give the BEST hugs. You’ve never had a hug ‘till you’ve had a Huddy hug! 

Unfortunately, Hudson is very susceptible to viruses that have kept him in the hospital ICU for more than half of his life. Because of this, they have had to keep Hudson confined within the walls of their home, limiting his exposure to the outside world. Sunshine on a Ranney Day is honored to bring light and joy into the walls that surround Hudson to help him continue living his BEST life!

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Photography by Vicki Alsup Photography

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Ciaran & Geordan

  • 19 & 16 Years Old

  • Lebers Congenital Amaurosos, Severely Autistic, Immune System Disorder, Tic Disorder

Ciaran and Geordan were both born with major disabilities. 19 year old Ciaran is totally blind and significantly autistic. On top of that, he has a tic disorder (tourette syndrome) and an immune system disorder. He has no sense of safety and will wake up throughout the night and bang on walls, doors, windows, and even his bed – waking up his brother. 

Geordan is 16 and was also born blind. He was also diagnosed with pretty severe non-verbal autism. Geordan also has no concept of safety, making the level of care required for the two boys quite extensive. With their mom’s recent cancer diagnosis, both parents work tirelessly to care for the boys and give them the fullest life they can.

They are both passionate about music and have an acute sense of hearing for pitch and tone due to their blindness.

Ciaran and Geordan are highly anxious and noise sensitive, so therapy items like swings, trampolines and instruments are very calming to them. They are both passionate about music and have an acute sense of hearing for pitch and tone due to their blindness. Both boys are unique and talented in their own ways, something that is so evident in their passions and skills! The space that Sunshine on a Ranney Day is providing for them will be life-changing in regards to their independence and individual needs.

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Photography by Niki Murphy Photography

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Bryce

  • 5 Years Old

  • Cerebral Palsy

Bryce is a vibrant and remarkable 5 year old boy who lights up the room. Bryce was born at 27 weeks and spent 2 months in the NICU . As an infant, he was diagnosed with Cerebral Palsy. Most of the time, he utilizes a walker and crutches to get around but recently received a wheelchair for long distances. His diagnosis does not deter him from his eagerness to explore and become independent.  He was destined to stand out in the most amazing way while warming the hearts of everyone who crosses his path. His great sense of humor and clever personality is loved and embraced by so many.

“Bryce is the nucleus of their village that keeps everyone connected and in high spirits.”

He attends kindergarten at Still Elementary with his 10 year old sister, London. His family feels so fortunate to have such a strong network of individuals who genuinely care about his mental and physical well-being. Bryce is the nucleus of their village that keeps everyone connected and in high spirits.

Bryce enjoys drawing and telling elaborate stories with fantasy and supernatural themes. He can spend hours creating intricate designs with magnetic blocks and participates in the Horizon Baseball League for children with special needs. We have no doubt that Bryce’s compassionate spirit, inquisitive mind and strong determination will go a long way!

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Photography by Nicole Wood Photography

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Levi

  • 6 Years Old

  • Nemaline Myopathy

Levi is a brilliant, sweet and chatty 7 year old boy who loves Ironman, Spiderman and Sonic the Hedgehog. He is affected by Nemaline Myopathy, a rare form of muscular dystrophy. Because NM affects his muscles, he is unable to walk and instead zips around in a power chair. Levi is unable to breathe adequately on his own, so he has a trach and ventilator to help him.

“…having a space that is adapted to assist him rather than being another obstacle, will be life changing!”

He has had multiple surgeries and hospital stays in his short life in an attempt to keep him healthy and maximize his quality of life. In moments like these, he loves being around his brother Ari for playtime. He still strives for independence and having a space that is adapted to assist him rather than being another obstacle, will be life changing! 

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Photography by Birchfield Photography

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Noah

  • 11 Years Old

  • Rasmussen Encephalitis

Noah was born at 32 weeks with no complications. He was a healthy active kid until 6 yrs old when he had his first seizure episode in the summer of 2018. Doctors couldn’t figure out why Noah was having seizures 10 times a day until an amazing doctor at Children’s Healthcare of Atlanta figured out what was wrong with him. In the spring of 2019, Noah was diagnosed with Rasmussen Encephalitis. In late fall of 2019, he had his first brain surgery (Right Hemispherectomy) and his last seizure.

“Noah has always had an open mind with the outcome of his surgery.”

Today, Noah is now physically disabled on the left side of his body and needs help with day-to-day needs. Noah has always had an open mind with the outcome of his surgery. He remains strong and motivated to regain some of his independence while playing sports with Gwinnett Heat in Gwinnett County. He has physical/occupational therapy 2 times a week, Botox every 4-6 months, and is doing amazing with his long recovery. Noah is super excited to have a space he can call his own where he can move around freely and independently.

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Photography by Niki Murphy Photography

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